Polymyositis & Dermatomyositis Support Group
Polymyositis (PM) is a type of chronic inflammation of the muscles (inflammatory myopathy) related to dermatomyositis and inclusion body myositis. The inflammation is predominantly of the endomysium in polymyositis, whereas dermatomyositis is characterized by primarily perimysial inflammation.
OK...well, i saw my new rheumatololgist today. I wasnt originally scheduled until Nov. 30th but they called me today with a cancellation and I grabbed it. They actually had injectable MTX in their office!! And it was $40 cheaper than buying it thru our insurance! So my husband became my dealer and gave me my first shot in the office today under the nurse's supervision. :) He was so proud of himself he said he is thinking of changing professions! :)
I really liked my new rheum. She could not believe I was on nothing right now and that my old rheum said there was nothing he could do for me since I had problems with the steroid.
We are starting me at 15 mg of the injectable MTX. She said if I do ok on that, they will bump me up. She is also ordering a lung CT just to check for any lung involvement. She also wants me to TRY 5 mg of Prednizone twice daily. She said if at anytime I felt it was hurting my stomach should stop it. With my increasing CK levels and pain she thought it would help to at least try a low dose steroid but NOT the Medrol I was on before.
So we will see what happens now! I am hopeful that things will get better now that I seem to have a more understanding and proactive doctor.
As always, thank you all for being there for me. Prayers and hugs to all of you as well. :) -Angie
I really liked my new rheum. She could not believe I was on nothing right now and that my old rheum said there was nothing he could do for me since I had problems with the steroid.
We are starting me at 15 mg of the injectable MTX. She said if I do ok on that, they will bump me up. She is also ordering a lung CT just to check for any lung involvement. She also wants me to TRY 5 mg of Prednizone twice daily. She said if at anytime I felt it was hurting my stomach should stop it. With my increasing CK levels and pain she thought it would help to at least try a low dose steroid but NOT the Medrol I was on before.
So we will see what happens now! I am hopeful that things will get better now that I seem to have a more understanding and proactive doctor.
As always, thank you all for being there for me. Prayers and hugs to all of you as well. :) -Angie
Love Hugs and Prayers :-)
So glad you pushed for a cancellation and grabbed, it, smart gal you are.
I am also so sorry you have to join our club of rare, rare disease sufferer's. It is a challenge but you are showing that your are more than up for the job.
Now are you taking Folic Acid with that MTX??? They seem to go hand in hand as well. Fantastic that your husband can help you, but i bet you are doing it for yourself in no time. Have a great time at your event Sunday, hope i am remembering right!!!
Shawna
I'm so glad you got in to the new rheumy, and it sounds like she's not going to waste any more time finding an effective treatment for you.
I just want to pass on another tip about prednisone. It's notorious for causing reflux, so get some Pepcid or other fast-acting antacid to keep on hand just in case. Best wishes for a happy stomach!
~Lucky
Maggie
I have my stomach ct on monday. Hoping to get some information on whats happening in my tummy from that.
Shawna, great memory! :) Yes, my sweet nephews baptism is on Sunday. I'm still nervous at how my body will respond to the mtx but my rheum seems to think i will do just fine on the injectable. Hope she's right! :)
Blessings,
Kim
Take Care
Ness