Polymyositis & Dermatomyositis Support Group
Polymyositis (PM) is a type of chronic inflammation of the muscles (inflammatory myopathy) related to dermatomyositis and inclusion body myositis. The inflammation is predominantly of the endomysium in polymyositis, whereas dermatomyositis is characterized by primarily perimysial inflammation.
Update: I have had two infusions. No Side Effects. I am able to drive myself home, and haven't had a headache at all.
Did feel some fatigue/sleepiness after I got home. Took a 30 min nap, got up feeling okay.
Still have to take 20mg Prednisone until after treatment is over. 2 down, 2 to go. Also taking my 15mg (6 pills) of MTX. Hard to tell if working, cause of my Fibro. Gonna have a CPK test middle of March.
Thanks again, Everybody, for your advice/hugs/prayers. All of it helped me go through the first infusion. You all held my hand in spirit.
I love Daily Strength...it helps me live with Poly.
Purr,
=^.,.^=
Had my 3rd infusion last Wed. Did fine; again just a bit sleepy. Don't know if it's helping or not. Guess I have to wait for blood tests, which I'm scheduled to get after the last infusion this coming Wed.
I know y'all's prayers are helping me. Thank you so much, friends. I'm very surprised my body is taking these so well, but I'm also thankful to God for His blessing.
I pray for all my fellow sufferers of any type of chronic disease, and hope everyone has been able to find happiness Despite their constant being ever ready to flare-up.
Hugs & Purrs,
=^.,.^=
Just had my last infusion yesterday. Was more tired afterward, slept nearly 3 hours after I got home. Getting a blood test for CPK today. Will see Rheumy on Thursday. Hope to come down from 20mg Prednisone.
Y'all lift my spirit. Thanks for your encouragement and prayers. I know they helped me do this treatment.
Purr,
=^.,.^=
Thanks autumm & nanny1611...I'll post results on 3/14 pm.
Hugs & Prayers to you and all.
Purr,
=^.,.^=
Just found out my blood results. CPK went from 306 to 159. Almost in range (20-140). Gotta stay at 20mg Prednisone for 1 month, then have another CPK. If still in one hundred range, then can drop to 15mg. Still on MTX 15mg on Sun pm. Now have RLS and Anemia. Don't know if Rituxan caused these, but need infusion of iron and daily iron elixir teaspoon for one month. Mobility good but slow and a bit jerky. I think the Poly is trying to now affect my hips and middle back. OH WELL... Bring it on, Poly.
My Rheumy and I feel the Rituxan was a success.
Hugs & A Sardine to all...Purr,
=^.,.^=
Thanks nanny and autumm...Purr.
To Everybody.
Even though we are anonymous to each other, there is a love that permeates our site. I feel that love every time I log on and read.
This is a great support group...I learn so much.
You are all in my prayers as fellow warriors and survivors.
=^.,.^=