Polymyositis & Dermatomyositis Support Group
Polymyositis (PM) is a type of chronic inflammation of the muscles (inflammatory myopathy) related to dermatomyositis and inclusion body myositis. The inflammation is predominantly of the endomysium in polymyositis, whereas dermatomyositis is characterized by primarily perimysial inflammation.
1) Have you tried coconut oil on your rash?
2) Has your doctor ever tested your vitamin d levels?
3) Could you possibly have food allergies?
As difficult as it might be, try not to diagnose yourself. There are many reasons for myositis and/or lupus rashes, and it's not always cancer. When you see your doctor, please let us know what s/he says. I'm so glad you found this site. Feel free to vent or express your emotions here anytime. We are here for you. Best wishes for a better tomorrow.
Hang in there and not be so low specially bow because you are doing all that you can! No point in stressing when you have no control! You'll get it figured out soon ! sending prayers and good thoughts your way --- Ang :)
There is a group on Face Book called Myositis ramblers. There are a number of folks there from the UK and they all see Dr. Cooper in London i believe. He is the one that can do Myositis antibodies. Some of the antibodies are more linked to cancer, but all of us get a good cancer screen when diagnosed. Wishing you all the best, Shawna DM, and a nurse...