Polymyositis & Dermatomyositis Support Group
Polymyositis (PM) is a type of chronic inflammation of the muscles (inflammatory myopathy) related to dermatomyositis and inclusion body myositis. The inflammation is predominantly of the endomysium in polymyositis, whereas dermatomyositis is characterized by primarily perimysial inflammation.
Yesterday I didn't have to take pain medication at all and thought that I wouldn't need it today, but about an hour or so ago my thighs started demanding a couple Aleve and I had to give in. I did less today then I did yesterday, so of course I don't understand why my thighs are hurting more today.
And my left thigh hurting just because the right thigh that had surgery hurts is just unbelievable. It acts as if it feels sorry for the right thigh so it tries to carry some of the pain. I wish that it would feel some sympathy for me and just stop hurting.
I am looking forward to reviewing my lab results tomorrow so that I can start back on my Cellcept. At least I hope that I want to get back on it. I have no idea how it will make me feel. I just know that I want to get started on the path to recovery. The swelling keeps going up and down in my ankles and I am sure it is because I sit too much, but what can a girl do when being active causes other issues. The life of a person with PM. What a story this makes. I have to see the humor in it. At least my dear daughter is taking me to lunch tomorrow after my doctor visit. I haven't eaten out since being diagnosed. This should be fun. Me, insulin and testing equipment.
And my left thigh hurting just because the right thigh that had surgery hurts is just unbelievable. It acts as if it feels sorry for the right thigh so it tries to carry some of the pain. I wish that it would feel some sympathy for me and just stop hurting.
I am looking forward to reviewing my lab results tomorrow so that I can start back on my Cellcept. At least I hope that I want to get back on it. I have no idea how it will make me feel. I just know that I want to get started on the path to recovery. The swelling keeps going up and down in my ankles and I am sure it is because I sit too much, but what can a girl do when being active causes other issues. The life of a person with PM. What a story this makes. I have to see the humor in it. At least my dear daughter is taking me to lunch tomorrow after my doctor visit. I haven't eaten out since being diagnosed. This should be fun. Me, insulin and testing equipment.
My daughter and I have always been so very close. I have 3 sons who are much older than she is. I was a more patient parent when she came along, plus the fact that I had a daughter, made me very thankful. She and I have had our ups and downs in life, moving from place to place and my up and down mental health due to anxiety, which is so much better, and job situations which have not always been so great and I believe that has made us even closer.
She knows that I love her as if she is my own heart and I know that she loves me the same. She will be 25 yrs old in Oct and she has never been a disappointment and she values life and loves God. She came in from work last night and while I was walking she gave me a big bear hug. I love having her in my life. I just have to express to her that I don't want her to wrap her life totally around me. I have to convince her that there are many things that I can do on my own and that I want her to go on with her own growth and development.
My thigh took a while to quit hurting too. I don't remember how long ago your biopsy was but be mindful to watch for anything that looks like infection. Can you put your feet up more while you are sitting? That will help with the swelling.
When I eat out I just try to keep my carbohydrates low. I'd eat something with protein (chicken, meat, cheese, egg) and some green veggies like a salad or side dish of veggies. That way I don't have to test myself at the restaurant. This Diabetes II is a trip by itself huh!
Hugs,
Lauren
My doctor's visit was good. My labs were good, even my CK, which surprises me. I started back on my Cellcept and now will wait to see what happens with that. We went to Red Lobster, where I hadn't been since 1995 and it was nice, not the best that I have eaten, but nice to be out and have shrimp. I had reviewed the nutritional chart prior to going and didn't have anything that I shouldn't have. In fact I tested my bg before I ate and it was at 68, so I was good. I did get heartburn afterwards, which I haven't had in a few years, but I have meds to take for it. I am now taking it easy and enjoying a hot cup of tea.