Ugh...I just get so stinking frustrated dealing with this disease! My rheumy had me tapering off Prednisone. I wasnt doing well with it, so we slowly went back up. I am up to 10 mg again. It has helped with most of my pain at that level though I still have this persistent pain in my left arm that starts in my shoulder and shoots all the way down to the tips of my fingers. It aches ALL THE TIME. My knee pain has gotten better on the higher dose of Prednisone which is good. My moodiness is not so good. I feel like a bit of a basket case.

I called my rheumy yesterday and 8 hours later her nurse called me back. I wasnt home so she left a message. I am to decrease my Prednisone by 2.5 mg each week. Huh??? They just told me last week that part of why I probably relapsed before was because I was tapering too quickly. Now they are telling me to decrease by 2.5 mg a week???? I dont get it at all. She is also increasing my MTX injection from 15 mg a week to 20. I just went back up to 10 mg of the Prednisone on Wednesday. Now I am tapering already??? I couldnt call back because it was too late but I'm going to call on Monday and find out how all of this makes sense. My CK's were low which is good but still. This doctor is the one who told me you cant just treat off the CK's and now it seems that is exactly what she is doing. AND one week she says we tapered too quickly and the next week she is having me taper even more quickly. ??? I am so confused and frustrated. My energy level is zilch. I dont sleep well at all. I am also starting a new job on the 29th.

I also continue to struggle with the "foggy brain" issues and feel off and on like I have a sinus infection or something. I'm scheduled with my family doctor on Friday.

Any advice or suggestions? I will take anything I can get at this point.