Polymyositis Community Group
Looking for people to discuss blood work and similar issues related to polymyostis. I'm on a quest to see what meds work. How diet has an effect on this disease and possibly figuring out the DNA, as well as environmental issues. Open to all.
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started feeling week legs about 2 months ago. Had MRI and edema in the hips and quads. Went to ER and ck was around 10k... READ MORE
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Hi I hope someone can help me understand this. I have had problems sense I was in my 30's I am now 55. All the time I... READ MORE
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Hello. Anyone out there? Looking for encouragement and hope. Is there any for this disease? Have any of you recovered? READ MORE
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Hi, I've had overlapping connective tissue diseases for about 6 years now, including arthritis, polymyositis, and... READ MORE
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I have been diagnosed with poly last summer. I am on the usual meds according to the Dr. Now he wants to try IVIG... READ MORE
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I have Mixed Connective Tissue Disease and I am part of a group for that disease. The only problem is my symptoms seem... READ MORE
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I would like to start a thread with permission along the lines of muscle weakness, treatments, strength gain, etc. I... READ MORE
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Hi ,Just thought i'd ask if any of you guys have tried Rituximab infusions?I was diagnosed in 96 with PM and over the... READ MORE
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My Doc has always said my problems were caused by a toxin. None of the blood work has pinpointed anything. I've... READ MORE
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Good morning all!I am testing a theory and would love others to participate.Watermelon, yes I said watermelon!As some... READ MORE
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I've attached this information for those of you like me who used Ibuprofen!Perhaps we should think about everything we... READ MORE
