I was diagnosed with endo at 17 in 2008 and 1 year later i started showing pcos symptoms so now im trying to get a diagnosis for that. what endo aymptoms are you having and have you had a lap yet?

also you should join the endo support group here on ds. the ladies are amazing!

I have both. They threw around PCOS about 8 years ago or so, but I didn't get formally dx until last spring. They also threw around endo at the same time, with dx occurring in 2007.

Why are you thinking you have endo? How did they determine you have PCOS?

I have more symptoms of endo then PCOS- I saw a nurse pract for depression and when we sat down and talked about my lack of period and modd swings etc... she sent me for internal ultra sounds and blood tests. They all came back saying I had it. I need to see a specialist tho- just dont know where to go? How do you find a doc that knows about it and how to treat it? I get no where!

Your blood tests and ultrasounds said you came back saying you had endo or PCOS? Endo is only medically diagnosed through laparoscopy, this is what you need to get :)

Post in the endo forum about doctors in your state, usually you get some replies, goodluck x

I was told I have PCOS.

You can have both, it's actually one of the long list of things women with endo are likely to also have.

I would trust the bloodwork and ultrasounds :) But also get the surgery if you can. As I said the women on the endo forum awesome with helping on the doctor front! :D

Goodluck
x

I know they didn't want to do the lap with me for endo because I wasn't in "enough" pain. It wasn't until I had painful intercourse that my ob/gyn FINALLY decided to do a lap, and diagnose with the endo. I'm TTC....if you are I would suggest finding a reproductive endocrinologist. If you're not, just an endocrinologist. :-)

Shanny thats horrible! You have to be in "enough" pain! URGH! My first obgyn told me and my mother I have either endo or adenomyosis or both all based on my symptoms and ultrasounds. Mum begged her for an operation and she simply said "it wont help or fix anything so I wont". and before that "all women get bad period pain".

I wish I could see her now - oh how I do!

Isn't it ridiculous?! I should clarify...my pain was taken care of by having my periods hormonally suppressed. (Percocet is the only drug that relieves my period pain). I waited until marriage before having sex, so there just wasn't enough info to go by. My poor husband during our honeymoon! TMI! But really! Stupid endo. Anyway, I really wish the medical community would be more proactive and understanding. It's amazing to me the women who are forced to have a period despite endo pain! Or doctors don't diagnose with PCOS because they "don't meet all the symptoms." Crazyness...

I agree with you 110% - I am currently having my period as I can't take anymore hormones, either due to having tried them and failed or due to my osteoporosis. It is truely horrible!

I'm also having a horrible time with my ovaries...pain etc, I bought a OPK and I'm going to see if I'm even ovulating. In Jan I was and I didn't have ovary pain really, but it's horrible now.. Hopefully my next surgery brings more light. Its truely a Suffer in Silence for most of us. We have to be our own advocates!

I hope things have improved for you :D
xx

You look way young to have osteoporosis! I'm sorry to read all that you're going through right now. Good luck with the surgery. What are they doing exactly?

Things have improved for me-with a lap and physical therapy, actually. Still not perfect, but it's at least doable! ha ha.

I got osteoporosis from being on Depo provera (3 years). It's a look see, my endo grows quickly, they're looking to see how quicklyit's grown since excision..and to make sure nothing else has been missed.

I am going to PT next year :) after my surgery!

Thats all we wish for sometimes hey, for things to be doable so we can continue in life :)

I didn't realize that was a risk for depo. I had requested depo a few years ago. My ob/gyn refused to do it because of the side-effects it has on fertility. She wouldn't do it until women are closer to 40 and sure they don't want kids. I'm glad I didn't get it! i'm having enough trouble as it is! haha.

PT helps A LOT. It's awkward at first, but worth it in the end.

I was diagnosed with endo when I was I was 19. I also have PCOS which I was diagnosed with last January. I had no idea what PCOS was at the time, nor did I know that I had any of the symptoms, but once I was diagnosed it made total sense.

I keep on hearing all these symptoms people have and i am realizing that i have them- always thinking they are normal ways to feel- and they are not :( it makes me sad- i have so many ailments i dont know where to begin! I was emailing a woman at a specialists office and she said someone would call me and no one ever did. I guess I am going to have to find some big hot shot specialist in a big city because no one else is helping me :( im so down about it