Polycystic Ovarian Syndrome (PCOS) Support Group
Polycythemia is a condition in which there is a net increase in the total circulating erythrocyte (red blood cell) mass of the body. Primary polycythemia occurs when excess erythrocytes are produced as a result of a proliferative abnormality of the bone marrow. Secondary polycythemia is caused by increases of erythropoietin that result in an increased production of...
Some advice I can give is:
-Drink lots of water. 64oz daily. Not only will it help with your PCOS, but it will make your whole body feel better.
-Exercise. Do things you enjoy and change it up when needed. Keep it up keep your body moving.
-Tea. I love tea, and it seems to be helping. I drink green tea, pomegranate blueberry, and raspberry leaf tea. The red raspberry one helps regulate my periods and it seems to do a good job (mind you, I'm also on bc, but with the raspberry leaf, I know when it will start and end and it is actually a rather bearable period).
- Find what works for you. Yoga, acupuncture, simple stretching, etc. Research supplements and talk to your doctor. Try not to take things without asking first, especially if you are taking prescription meds. Metformin is a prescription drug talked about a lot on the pages, I'm currently not on it (doctor doesn't think it is necessary, my glucose is normal), but you can talk to your doctor about it if you would like.
-Talk with your doctor and make sure you have a good relationship with them. I had a doctor who flipped me off for years and didn't care about me. I think I've had PCOS since I was a teen and due to the lack of give a damn from my doctor, I got most of the symptoms. I recently got a new doctor who looked at me and pretty much told me he wants to run a few tests but it is probably PCOS. He also referred me to an endocrinologist and a psychologist and I am already feeling better knowing someone cares and is actually trying to see me get better.
But keep hope, women with PCOS can and do have kids, and if you take steps now to manage it, you can too. And don't stress! Not only does it make the PCOS worse but you deserve to feel better!
If I think of any more, I'll send you a message! Feel free to message me if you have any questions! Even if I don't know the answer, I love researching things or we can find out the answer together!
My now mother in law pulled me aside and said I couldn't avoid children, or people with children or pregnant people forever (Though sometimes I still wish I could.) Though it's hard, I began to shift my focus from wwanting and needing to have a child, to enjoying what life I have. It seems really tacky, but whenever I find myself getting down about not having a baby, I think about "Wow, I'll save a lot in college funds, I won't have to find a babysitter, I'll save on daycare, I'll be able to SLEEP! (One of my favorite pasttimes) We can go out when we want, and have a few drinks without worrying."
Lately I have started walking on my days off. I have found a trail nearby where I can go walk about 3 miles, and get some of the stress out. It has helped me so far when it comes to dealing with the emotional aspect of this diagnosis. The walking and the eating right, I'm hoping will help with the physical aspect of this.
That wasn't the hard part. The hard part came after when we decided to try again, but I never had a period. I went 5 and a half years without a period and no doctor could tell me why. Until a wonderful doctor who found out I had PCOS, and again was given the can't have a baby speech. By that time we decided that we were done trying anyways, so my focus has just been to get my health back to where I want it to be.
I think that the hardest part for me, having a doctor tell me that having a baby was going to be close to impossible, was not really the fact that I couldn't have a baby but the fact that it wasn't my choice. It was being made for me.
Dealing with the low energy level is hard, I know how that goes. And the weight thing is no fun either. I hate looking like I am pregnant when I'm really not. And it is hard to have a positive outlook about myself when I feel to large to be pretty. I'm sure my husband gets tired of it.
The main thing that I try to do is stay positive as much as I can. I make sure that I am doing everything in my power to make things better. I set small goals for myself so that I can reach my larger goals. My small goals right now are to get back into my workout, since I was slacking last week. And then I will add to that as time goes on. I think the hardest part about dealing with hard issues is how much it effects my emotions. I get so emotional because of hormones and it is hard to think straight. But things like venting and journaling all help with that.
When I was about 25lbs lighter, I felt great, normal periods and I felt beautiful. But now that the weight is back on, I feel like I look so gross. Its so hard to lose the weight.
I wish you all the luck on getting pregnant!! Thank you for sharing your story it made me feel like that there is hope :)