Hi there,

So sorry you have this problem again. Hopefully the antibiotic will start to take effect soon. I was given the same one back in January and I did recover, though nobody actually knows what I had. The augmentin really upset my digestive system, which is just what you need on top of the symptons you already have. Make you you take it with food (diffcult when you have severe nausea). If it doesn't work, you may need a different antibiotic.


Get well soon,

Chewitt

Well the urine culture came back as an infection with massive amount of pus, I didn't improve after 3 days antibiotics so GP had me admitted to hospital where I had IV antibiotics for what they thought was a kidney infection, but blood tests didn't show infection, ended up in absolute agony with kidney pain I thought it was a kidney stone but this wasn't confirmed, ended up having a CT scan and that showed yet more cyst bleeds. So after 5 days in hospital and a total of 10 days antibiotics which I finished last Friday and the kidney pain and feeling yuck have started again today Can it really be starting again I suppose I need to see GP again but am fed up of it to be honest

Oh I'm so sorry billylyne5. There are a number of possibilities here:

1. Your infection didn't clear up completely whilst in hospital and so it's back.
2. You didn't have a kidney infection and the symptoms were from the cyst bleeds, which can be very painful indeed.
3. You have a new infection.
3. You have new cyst bleeds.

I guess you need to go back to your doctor to check for infection again. Sometimes people neeed to take antibiotics (the right ones) for several weeks to make sure the infection is conquered.

Is it possible that you're over doing things and causing cyst bleeds by something you're doing? I had a terrible time after shovelling snow a few years ago, but also found things like grocery shopping, lifting and carrying any weight at all caused problems. Even wearing shoes with rigid soles which didn't cushion the blow of walking caused me problems with pain which I think was from ruptured cysts. I now avoid any physical stress to my body and choose my footwear carefully.

I completely understand that you are fed up with this. I feel like that at times, too. I narrowly avoided hospital myself back in January and was very relieved. Your GP probably won't know what to do so it might be worth calling your renal consultant for advice.

Let us know how things go.

Take care,

Chewitt

I think it's probably bleeds, at the moment it definitely gets worse if I am more active, they also hurt more when I eat or drink so rest is the order of the day I think, my appetite is pretty poor at the moment too.
I'm am currently seeing a rheumatologist as they think I have sjogrens which is an autoimmune condition. I know that this can also effect the kidneys but not sure how or if that may be an issue, my rheumatologist and nephrologist are at different hospitals in different areas, I think I need to move care so they are at the same hospital so I can have some joined up care.

Have they discussed the possibility of it being an infected cyst? I have been hospitalized three times of in the last year due to kidney infections - agonizing pain, low grade temp, sometimes blood in urine, sometimes not - and each time the doctors are certain it is an infection within one of my cysts. They were able to isolate bacteria in the urine but a cyst infection does not necessarily show in blood tests. Cyst infections are equally serious if not treated with the right antibiotics because you are at risk of sepsis and kidneys losing function and shutting down. Augmentin is not a drug that has ever been used to treat my infections, and honestly I have never heard of that being used for kidney infection. Ciprofloxacin is often the first line antibiotic for kidney infections, but the hospital lab folks must first isolate the specific bacteria. Often it is E Coli, but there are other strains that respond to other antibiotics. IV therapy in the hospital is usually necessary to clear the infection followed by a 10 day course of oral antibiotic. I'm not ruling out that you have a cyst bleed but based on your symptoms I would say that you have an infected cyst or cyst(s) that need the right course of treatment. I would talk with a nephrologist about this and if you are not satisfied, find another doctor. I would not count on a GP knowing very much about PKD as they rarely do. Keeping good thoughts for you.

I have augmentin because I can't take cipro as I am allergic to it. Which always gives them a headache It was E. coli and it was sensitive to augmentin as per lab tests. I did have IV followed by oral antibiotics so hopefully it will settle now for a while at least

Temperature has been ok this week, just painful kidneys, I am just considering changing my nephrologist so it is the same hospital where I end up being admitted too in the hope the treatment may be a bit more catered to my illness rather than general medics

I've just seen my renal consultant today and he thinks everything points to my infection back in January having been a cyst infection. It responded to the Augmentin, fortunately. It was horrible and I'm worried about developing it it again, now. I knew about the Cipro being the best antibiotic for cyst infections, but at the time of it being prescribed a more simple kidney infection was suspected, so it was lucky that the Augmentin worked.