Polycystic Kidney Disease (PKD) Support Group
Polycystic kidney disease (PKD) is a progressive, genetic disorder of the kidneys. It occurs in humans and other organisms. PKD is characterised by the presence of multiple cysts (polycystic) in both kidneys. The disease can also damage the liver, pancreas and rarely the heart and brain.
Hello everyone,
I have been diagnosed with PKD when I was little and I've had to take high blood pressure medications for about 7 years now (I'm now in my early 30's). I've been blessed with no other symptoms except for a ruptured cyst with blood in my urine about 5 years ago.
A couple of days ago I woke up with sudden left flank pain associated with nausea and headaches. The symptoms didn't change much over the following days until the flank pain suddenly moved to the right side. This morning I woke up with a sharp pain on my right side and lower abdomen and discovered some blood in my urine. The headaches and nausea are also still consistently there.
I don't know if these symptoms are linked to each other and I can't figure out the cause of the pain I'm dealing with.
Has anyone experienced similar symptoms and can give me some advice? Is this gonna be the beginning of constant pain or is there a chance of it to fade?
Going to the doctor isn't easy at the moment so any advice would be really helpful :)
It sounds like it might be a kidney infection or a cyst burst. That kind of sudden pain isn't something that should be constant.
On a related note, you should think about joining my WhatsApp group :) we have some great people there and we all support each other. It can be hard to find other young people going through this
I would echo MollyT ie it sounds like you may have an infection. I hope that by now you have seen a doctor about persisting symptoms. It’s important to treat an infection as further damage can be done if it’s not treated promptly. You will need antibiotics and if left for too long you will end up needing intravenous antibiotics. I have always had nausea as part of kidney infections and a great deal of pain. Get well soon.
You were right, turns out it is an infection!!! After I started getting a fever I went to the doctors and got antibiotics for it. Today is the first day in 2 weeks that I feel better:)
Now I know to look out for these symptoms!!
@MillyT How do I join your WhatsApp group? :)
To join the group, download WhatsApp from the app store and follow the link:
https://chat.whatsapp.com/0mZEjCQEZauGjNgQvT0eFs