Polycystic Kidney Disease (PKD) Support Group

Polycystic kidney disease (PKD) is a progressive, genetic disorder of the kidneys. It occurs in humans and other organisms. PKD is characterised by the presence of multiple cysts (polycystic) in both kidneys. The disease can also damage the liver, pancreas and rarely the heart and brain.

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Sports

Just looking to get others thoughts on this one. I gave up Jiu Jitsu on the advice of a consultant when first diagnosed. Mentioned it at my last check up and the new consultant felt the health benefits of doing it and keeping fit outway the downside whilst kidneys aren't huge (19cm). So gone back but going stready.


Any others had conflicting advice regarding activities? 

Replies

enigmaticloner
enigmaticloner

I haven't heard any advice really besides avoiding contact sports like football and what not which I didn't have a problem following as I don't do those kinds of activities really.
Chewitt
Chewitt

I think the advice is generally, and sensibly, that if what you're doing doesn't cause you any problems i.e. pain, then carry on with it. If you were to start finding that you suffer pain after your Ju Jitsu sessions, you might want to rethink. Whilst kidneys are small, the limitations are few.
Rhinotmetos
Rhinotmetos

I used to go for a fast walk early in the morning every day. Five, six miles. Just for exercise's sake. One day, almost exactly two years ago I slipped and fell hard on my side. Just some bruises. But some days later I swell up like a balloon. Spent two months in bed. Completely deranged labs. I thought I wouldn't make it. Lost about 15 kg.

Contact sport might be risky, as a cyst might rupture.

Good luck,

R.
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