I was diagnosed with PKD about 3 years ago. It was found on a bit of a fluke because my blood pressure jumped pretty quickly (normal in July, then dangerously high in January) and so my doctor ordered tests to find the cause. She had a cat scan done thinking it was an adrenal issue and found the cysts in my kidneys.
I initially took Lisinopril (40 mg/ day) which kept my blood pressure in check. My husband and I would like to start our family though and that medication can not be taken in pregnancy. We have been trying for two years to find a safe medication that can control my blood pressure and have yet to find one that works. I am exhausted, tired of doctor visits, and just crushed because two doctors now have suggested I start considering adoption because pregnancy may not be safe for me.
I try not to over-research, because I am not a doctor and I don't want to make judgements that I am not trained for. However, I have read quite a bit about renal hypertension lately. Has anyone been diagnosed with renal hypertension? My kidney function is still 99%, but I understand that renal hypertension doesn't necessarily affect kidney function in the beginning. My primary care doctor does not seem well versed in PKD, and my nephrologist rarely deals with women who could be pregnant, so neither of them have been much help. I just started seeing a cardiologist who seems to have an understanding of PKD. None of them has ever done an ultrasound of my kidneys. The only imaging I have had done is that initial cat scan that found the cysts in the first place and the possibility of renal hypertension has not come up. However, some medications work for short periods (and hour or two) before my BP hikes back up to it's typical 170/110 and that seems to be a common sign of renal hypertension.
Hello everyone. At the Docs office for broken rib and they told me I had PKD & PLD. I asked what that was because I've never heard of it. Prior to that I was at the hospital for what I thought was appendicitis, which embarrassingly turned out to be constipation:/. At checkout the nurse told me they found 2 tiny cysts on my liver. He asked me if I drank a lot and I said yes because... I do. Or at...
My last ultrasound showed that my largest cyst shrank from a 3.8cm to 2.4cm. It also showed that my largest kidney stone had shrank too. I understand the possibilites of the kidney stone getting smaller, but isn't PCKD an "uncurabel disease"? Dosn't that mean that the cysts don't "shrink".. they just get bigger with time? Has this happend to anyone? I'm assuming this means that the...