Polycystic Kidney Disease (PKD) Support Group
Polycystic kidney disease (PKD) is a progressive, genetic disorder of the kidneys. It occurs in humans and other organisms. PKD is characterised by the presence of multiple cysts (polycystic) in both kidneys. The disease can also damage the liver, pancreas and rarely the heart and brain.
Small Molecule CFTR inhibitors appear to slow Cyst Growth in PKD while also preserving your current kidney function.
Sounds promising, see the following link.
http://www.medicalnewstoday.com/releases/102715.php
Sounds promising, see the following link.
http://www.medicalnewstoday.com/releases/102715.php
The article is dated 2008 so was a while ago now. As this bulletin points out, it can take 15 years for anything to come from a good idea:
http://www.gsttkpa.org/latest-research-into-adult-polycystic-kidney-disease-adpkd/
There are some further links here to current research and trials if anyone is interested.
This article shows how many ideas there are to follow up:
http://www.nature.com/aps/journal/v32/n6/full/aps201129a.html#close
I read study report which said that the single most important factor in determining outcome in PKD is the type of mutation. PKD 1 is associated with reaching ESRD 20 years earlier than with PKD 2 (age 79), but the actual type of mutation (there are over 1000!) is also very important. That's why we all have a different story to tell.
http://pkdcharity.org.uk/images/downloads/medical/2013-type-of-pkd1-mutation-influences-renal-outcome.pdf
Still hoping for progress, but not holding my breath.
Chewitt