Polycystic Kidney Disease (PKD) Support Group
Polycystic kidney disease (PKD) is a progressive, genetic disorder of the kidneys. It occurs in humans and other organisms. PKD is characterised by the presence of multiple cysts (polycystic) in both kidneys. The disease can also damage the liver, pancreas and rarely the heart and brain.
Sherbear1982
I am looking for some input from all of you and I appreciate any comments. Myself and my brother have ADPKD and we have multiple issues but one of my sons has ARPKD and he is my main concern right now. He has had many issues recently including a brain aneurysm to get an idea of the stress but what I want to help him with right now is the severe acid reflux he has. It may not sound like a priority but it is for him so it is definitely for me. Not only do I think omeprazole is not the best choice for him but it does not help him at all. Any one taking something for this that has helped and not contraindicated with their PKD. I realize people react different with medications but just trying to narrow it down. Thank you so much for any input!!!!
****It has been so long since I have been on this sight I just couldnt recall where to post my concern to be seen so you may see it in 3 different places but here it is again. Thank you for any suggestions:)
I am looking for some input from all of you and I appreciate any comments. Myself and my brother have ADPKD and we have multiple issues but one of my sons has ARPKD and he is my main concern right now. He has had many issues recently including a brain aneurysm to get an idea of the stress but what I want to help him with right now is the severe acid reflux he has. It may not sound like a priority but it is for him so it is definitely for me. Not only do I think omeprazole is not the best choice for him but it does not help him at all. Any one taking something for this that has helped and not contraindicated with their PKD. I realize people react different with medications but just trying to narrow it down. Thank you so much for any input!!!!
****It has been so long since I have been on this sight I just couldnt recall where to post my concern to be seen so you may see it in 3 different places but here it is again. Thank you for any suggestions:)
I have acid reflux, largely owing to the fact that my massively enlarged liver is sitting on my stomach, I think. If your son's kidneys are very enlarged, they may be having the same effect, but anyone can suffer acid reflux, fo various reasons. If it is a long term problem, gastroscopy may be indicated to check that there is no bleeding anywhere.
I was taken off Omeprazole as it is not very kidney friendly. I didn't find it helpful anyway. I've been told to use ranitidine by that doesn't work either. I just basically put up with it now. Avoid spicy foods, alcohol and large meals as these things make it worse. I've accepted that with so much pressure on my stomach, this is something else I have to live with. No medications are going to help. Things may be different for your son, depending on the cause. Has he seen a Gastroenterologist? This is the best consultant for advice.
Chewitt
Chewitt
Chewitt