I'm reaching out to hear what others experienced when they were first diagnosed. I have been having problems with episodic hypertension for a few years now. My bp is typically 80s/40s. During an episode, I get incredibly weak and bp shoots up to 130s/90s. All of my problems started with urine retention that led to self-cathing for a week. Finally, with enough complaining of right kidney pain my provider decided to run some tests. I have blood in my urine, a GFR of 82 (I'm 35), an MRI showing "scattered cysts bilaterally", one hepatic cyst/biliary hamartoma, and a ureter that doesn't opacify. One renal cyst is 8mm the rest 5mm. My provider had no idea what was going on so she referred me to a urologist, who I see Thursday.
I guess I am just wondering if this sounds familiar to anyone. I would love to frolic in the simple cyst region, but it wouldn't explain any of my other symptoms. Thoughts?
I have PKD but my brother is clear. He has offered me one of his kidneys.What is the procedure to find out if he is a compatible donor? Do we need to be tested at the same time in the same hospital? (As I wrote in this forum about a month ago, Chinese medicine seems to be working for me. I'm hoping that I'll never need a transplant, but it doesn't hurt to get tested, I hope!)
Hi, I am 59 years old and was diagnosed with PKD in 1982. Myself and 3 siblings got PKD from my Dad's side of the family. His mother had kidney disease. It skipped my Dad's generation and 3 other siblings and myself got PKD. I was diagnosed with stage 5 on 12/12/2017 and have been on dialysis since 12/15/2017.I am scheduled to go for a consultation on March 8 for PD dialysis. I am...