others' experiences when first diagnosed
I'm reaching out to hear what others experienced when they were first diagnosed. I have been having problems with episodic hypertension for a few years now. My bp is typically 80s/40s. During an episode, I get incredibly weak and bp shoots up to 130s/90s. All of my problems started with urine retention that led to self-cathing for a week. Finally, with enough complaining of right kidney pain my provider decided to run some tests. I have blood in my urine, a GFR of 82 (I'm 35), an MRI showing "scattered cysts bilaterally", one hepatic cyst/biliary hamartoma, and a ureter that doesn't opacify. One renal cyst is 8mm the rest 5mm. My provider had no idea what was going on so she referred me to a urologist, who I see Thursday.
I guess I am just wondering if this sounds familiar to anyone. I would love to frolic in the simple cyst region, but it wouldn't explain any of my other symptoms. Thoughts?
Hello everyone! I'm new here and don't know exactly how these posts work, but I'm here to reach out for advice...I do not have PKD but my boyfriend was diagnosed months ago with "the worst possible case" of this disease...he's been sick for well over a year before he was diagnosed. for all of you who have it..I'm sure you can all sympathize with him. He's 29 years old. His father, aunt, and uncle...
Hi all,I wrote here about 6 months ago...i was very anxious and scared , diagnosed with pkd accidently (no symptoms)... my father was a very complicated case , died 2 years ago in 3rd transplant surgery(!). He had very big kidneys and very high blood pressure from young age.I feel better now mentally and Im optimistic.I'm 28.5 recently did an mri , my right kidney looks better than the left...
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