others' experiences when first diagnosed
I'm reaching out to hear what others experienced when they were first diagnosed. I have been having problems with episodic hypertension for a few years now. My bp is typically 80s/40s. During an episode, I get incredibly weak and bp shoots up to 130s/90s. All of my problems started with urine retention that led to self-cathing for a week. Finally, with enough complaining of right kidney pain my provider decided to run some tests. I have blood in my urine, a GFR of 82 (I'm 35), an MRI showing "scattered cysts bilaterally", one hepatic cyst/biliary hamartoma, and a ureter that doesn't opacify. One renal cyst is 8mm the rest 5mm. My provider had no idea what was going on so she referred me to a urologist, who I see Thursday.
I guess I am just wondering if this sounds familiar to anyone. I would love to frolic in the simple cyst region, but it wouldn't explain any of my other symptoms. Thoughts?
my husband has Polycystic kidneys and has been on dialysis for 4 years, lately his medicated perfect blood pressure has gone high, so he has upped his medicine, like he was told, it's still high and we aren't sure whyI think it could be the cysts have got bigger, we don't see the specialist fir another three weeks, anyone have the same problem?
Today is Monday, we have an appointment on Thursday to discuss where my husband is with his PKD. So this past Friday he had to draw his blood so we can talk about it during our upcoming appointment. Well, they felt the need to call today with his potassium results. They were asking how is feeling, and they were very worried. His potassium level is a 6.9. Severe levels are at 7. They were acting...
hello im 25 and we just recently found out my baby has PKD during my 23 weeks ultrasound with no amniotic fluid.Baby's heartbeat and movements are good. Me and my husband's sides doesnt have any history of PKD.Does anyone have the same experience? I am hoping and praying for any chances of survival.Any advice? or treatment to help my baby survive? Hoping someone could respond.Badly needing...