My fiance, his mother and sister have PKD
My fiance of 9 years told me up front when we got together that him, his sister and his mother have PKD. I've done some fairly extensive research, been to some of his dr. appointments and have utilized other forums to ask about this debilitating disease as well as its many affects on the family and other everyday functions.
Within 6 months of our relationship, we found out I was pregnant and that's when more questions came up as you can likely imagine. When he and the OB/GYN told me the risks for our offspring having or developing it were higher than not developing it, I got a little more freaked out or scared. My fiance told me that his mother had just recently gone through transplant of one or both of her kidneys a few months before we met and that his sister was on dialysis cause her kidneys were failing to work properly, so she was looking at getting a transplant withing a few years as well. His prognosis is a lot healthier then theirs because he eats better then they do/did and he really manages his blood pressure and weight along with exercising a lot more wokring the job(s) he was working at when we met. He's only on a blood pressure medication with a water pill to help keep the PKD under more control, but he could one day end up on dialysis like his sister and his mother were/are. His sister recetntly (like withing the last 9mos give or take had to have her kidneys removed and is now dependent on dialysis til she stops smoking and or they find her functioning kidneys. She has lost a lot of weight and looks a lot healthier, but I do not think she has quit smoking yet and I'm not too sure about her eating habits either anymore.
What I'm concerned about here is the serious chances of our 8 year old daughter developing it. She does eat fairly healthy, but we restrict her on a lot of things and I'm thinking that when she gets to be more independent like when she turns into an adolescent, she may eat more of what she has been denied regularly to eat. We are already seeing that we have to remind her to drink fluids frequently and she does have a belly, but its not too much of a concern at this point. I would just really like to get feedback on what others have tried if the disease runs in the family!? Thanks.
my husband has Polycystic kidneys and has been on dialysis for 4 years, lately his medicated perfect blood pressure has gone high, so he has upped his medicine, like he was told, it's still high and we aren't sure whyI think it could be the cysts have got bigger, we don't see the specialist fir another three weeks, anyone have the same problem?
Today is Monday, we have an appointment on Thursday to discuss where my husband is with his PKD. So this past Friday he had to draw his blood so we can talk about it during our upcoming appointment. Well, they felt the need to call today with his potassium results. They were asking how is feeling, and they were very worried. His potassium level is a 6.9. Severe levels are at 7. They were acting...
hello im 25 and we just recently found out my baby has PKD during my 23 weeks ultrasound with no amniotic fluid.Baby's heartbeat and movements are good. Me and my husband's sides doesnt have any history of PKD.Does anyone have the same experience? I am hoping and praying for any chances of survival.Any advice? or treatment to help my baby survive? Hoping someone could respond.Badly needing...