Hi All! New to the group, I was diagnosed with AKPKD about a year back, my kidney function is pretty normal currently. Hoping to keep it that way for as long as possible! I met with a new doctor today who wants me to start BP medication even though my bp is in the normal range. He also adviced me to start Tolvaptan, I'm a little reluctant since it's still in trial. Just wondering if anyone is doing it and also if anyone has tried marijuana oil to slow down the process. Thanks for sharing!
Hi everyone. My nephrologist has just prescribed me Tolvaptan. I know there were positive results from the trial but the lifestyle change in terms of drinking more water and going to the toilet scares me. How are you finding it, if you are taking Tolvaptan? Does anyone take it ever have the odd glass of wine or coffee?I would be keen to know and receive your support
Hi Guys - not sure if you have read this before, but have posted about this on this forum earlier.The Artifical Kidney Project is all set to get into clinical in human trials early 2018! if all goes according to plan the device can be launched as early as 2020.I know this information is a big ray of hope for me. Initially, I didn't want to pin my hopes up on this project to be disappointed but...