I realise our am lucky only to have PKD. There are a lot of families dealing with worse diseases and illness. My post is really vain and I feel like a phony posting on here. I am 37, I still have good renal function but my kidneys are quite huge now. Over the past 8 weeks I have been asked on several occasions about when my baby is due. I find people staring at my abdomen quite a lot. It is just all a bit embarrassing. I can't seem to find clothes that hide my belly well enough and I have thin legs which emphasise it more. I guess it would just be nice to hear from some kindred spirits to help me laugh it off.
Hello everyone! I'm new here and don't know exactly how these posts work, but I'm here to reach out for advice...I do not have PKD but my boyfriend was diagnosed months ago with "the worst possible case" of this disease...he's been sick for well over a year before he was diagnosed. for all of you who have it..I'm sure you can all sympathize with him. He's 29 years old. His father, aunt, and uncle...
Hi all,I wrote here about 6 months ago...i was very anxious and scared , diagnosed with pkd accidently (no symptoms)... my father was a very complicated case , died 2 years ago in 3rd transplant surgery(!). He had very big kidneys and very high blood pressure from young age.I feel better now mentally and Im optimistic.I'm 28.5 recently did an mri , my right kidney looks better than the left...
Has anyone tried supplements like L-argenine, NAC or CoQ10? I know they all help bp but not sure of thier impact on PKD?
Hi there , I am 29 years old who inherited this disease from my dads' side of the family. Just recently I visited the neuro for a twitch I was having, and although he ruled the twitch out as a minor event, He asked me if I have ever screened myself for an aneurysm?Well I have not, no-one in my family has a history and my dad is 58 years old, with one transplant. Now that he has told me about...