the way to get an invoice is to buy something, the invoice is like the receipt you get from a store. I suppose it can be turned in to get a charitable donation after the fact. normally a copy won't work because it can be presented to several different charities for the same product.
as to heat affecting kidney patients, it can add to any edema (swelling) and that makes a person feel worse. cutting back salt as much as possible may help. if he is producing urine he may feel better if he drinks more water so he loses more fluid through urination.

I do get that. The point is, to get the money, I need the invooice. Now you are saying, to get the invoice, I need to buy the item of which I need the money to buy? Check mate!!

TenTen

TenTen, I think what we have going on here are a series of events. Misinturpretation of certain words and phrases and the appearance that you are requesting money from the people on DS, which you already know is forbidden!

If you could make your request a little clearer, maybe someone could help you. Spiderwoman is correct in saying what she did. In order to get an invoice, you have to buy something, period, end of story! If you need the money to buy something, you need to get it somewhere, are you employeed? do you have a job, I'am asking you. Do you have relatives in New Zeland that could help you? Anyone that could help you get the medicine you need for your son? We cannot do that here on DS, this is a support group for people and relatives with PKD, nothing else. Try and help us to understand what it is that you need, other than money!

lots of love,
Norma...

Norma, I am in Zimbabwe,. I might have relatives in NZ, but the point here is this: In order to buy something, an invoice is raised showing the cost of the intended product. Like I said, the invoice should be raised against thestrength of the prescription, or maybe you want to call it quotation? Call it what you weill. Then I can go to a financier to get cash to buy. That is the story.

The pharmacy in Britain says they have no problem delivering anything across the world. I will put their word to test once everything is sorted out. But they cannot give a written invoice/quotation or whatever . . .

TenTen

TenTen,
Heat makes us all miserable, and since dialysis patients can't drink as much fluids as the rest of us, it makes dealing with the heat even more challenging. One way to try to keep your son cooler is to cover him with a damp cloth at night, even if it's just the back of his neck, and have a fan blow on him at night (at least to the point he doesn't get chilled)? Anything that keeps him cool will help him sleep just as it helps the rest of us sleep!

As for the dabopoeitin (brand name is Aranesp), what dose is the prescription written for? 40 mcg, 60 mcg, etc.? The only difference between darpoeitin and the other forms of artificial erythropoietin is darpoeitin is a somewhat longer lasting version of Epogen/Procrit, has a different dosage measurement and is supposed to last longer in a single dose. It's generally more expensive as well, but that can vary.

It sounds like you need an invoice to unlock money from well-wishers. There are "pre-purchase invoices" that companies provide customers to give estimates of what it will cost you to buy products. You should be able to get from the company in London that will show what the cost of the medications will be and that should be sufficient to get your well-wishers to support your purchase of the darpoeitin from the company in London. We can't let terminology get in the way of getting you son his medication.

And please keep asking all of your sources for whatever Procrit, Epogen or darepoietin (aranesp) they may have available from their sources or any charities coming through.

May peace and blessings be with you and your son,
Ruth

Ruth--u are an angel! Never thought of covering my son with a damp cloth, just blew the air away and it never seemed to help much.

Pre-purchase invoice, eh? I like the sound of that already! Yes, darbe does cost more but not by much. We buiy Eprex at $250.00 for six and that is for just 6dialysis sessions. Darbe is around $700.00 for 12 injections which are given once every three/four sessions--still have to be sure because it talks of two weeks.

I will go for that one any day as it will last at least half a year!

By the way, he is going for yet another transfussion on Tuesday as I could not get the Epos for quite a while.

TenTen