Hi, I'm not sure if this will help any, but I've had two different nephrologist and they both have told me that the chances of my experience with PKD being the same as my mothers is unlikely. They have told me that each person has an individual way that their bodies progress with the disease.
I know it's hard to not get consumed with this ugly disease, I'm having ups and downs on the daily, but I try and stay busy because otherwise I get sad and honestly pissed off that this is happening. I try and keep reminding myself that no matter who you are or what life gives you its important to enjoy every moment that you can.

Hi there,
Welcome to the group. PKD is a disease which is made much worse by fear. For most people, the anxiety is about things which won't happen to them. What a waste of time and energy. Remind yourself that your fears are just thoughts, not facts. It helps me to do that. So far your scan is clear. You can have these every few years for continuing reassurance. I have opted not to have a brain scan: ignorance is bliss for me in this instance. If I develop symptoms, I will seek help quickly. In most cases, even if someone has a brain anuerysm, it is either deemed to be minimal risk or can be successfully treated, so I do not worry unduly about the possibility. It's still quite rare, even in the PKD population. As Live2tell says, your progression can't necessarily be predicted from your family history.

Concentrate on facts and things over which you have control. At the moment, you know that you have no sign of an anuerysm. Be reassured by this and put thoughts of it out of your mind. Focus on living healthily to preserve kidney function, as these are the things which are in your control. You are not your mother. Don't live your life imagining the worst, but strive for the best possible.

Same situation. I'm 26 and my dad died when I was 17 from (something). I had really bad anxiety about dying suddenly about a year ago. It got to the point that I was too anxious to even drive as I was afraid I'd have a heart attack and kill other people! The thing is, my situation isn't like my dad's. He was definitely obese, definitely did dialysis, definitely didn't care for his health that much, and probably abused the painkillers that were prescribed. I've managed to disconnect myself from him since I'm none of those things.

I'm not sure what caused me to be a lot less anxious now, but here are some ideas: For starters, I had to face my fears and get my heart and such checked out by a doctor. That was reassuring. I also had to eventually get in a car and take long trips. Surviving that helped me realize I'm not going to just suddenly die anytime I'm in a car. Right when the anxiety was at its worst I got a really great job and then that summer I was able to travel a ton and mark things off of my do-to list. Maybe you have unfinished business you want to do? I think it helped me.

I have that same fear, you're not alone, trust.

I think that cerebral aneurysm is congenital malformation, so if you have it, it would be visible on MRI or CT. Other words, one check are enough to see if you have developed this malformation or not.

Best wishes.

I have that fear . I agree with what shedoctor posted.

my mom died from the exact same thing when i was 14 (she was 41). i am now 31 and just have to keep a better check on myself. staying aware of how i'm feeling, and knowing when to seek help, have really helped me a lot with my anxiety of the same thing happening to me.

my mom didn't really go to the dr like she should have. so i make sure to do that. and also keep my blood pressure in check.

I was diagnosed 2 years ago with PKD at the age of 54. There is nothing more scary than to have your vision go out! I would go in for eye tests and they fluctuated so much! One day my vision was almost perfect and the next week I could not drive without glasses. I did some research and found the severe headaches I was having and the blurry vision was helped with fish oil. I am up to 2 capsules of 1000mg. each. The vision is back to normal and the headaches are gone. For the last year I have had no vision problems. Another that helped for pain is a small amount of powder sulfur in the evening in my water. It took me 3 weeks and the pain disappeared. You just have to keep researching and never give up and you will find things that help you individually! One scan is enough to find an abnormality, I agree. It sure set my mind at ease that I didnt have an brain abnormality.

Don't let fear consume you. Stay positive. I find journaling my fears helps get it out in the open. Get a nice journal, a nice pen, and write it all down.

The fact of the matter is you're not alone. You're not the first and won't be the last. Focus on what kind can do to make healthy choices every day. And if you believe in God or any form of religious diety, work on you're relationship with it.

Fears of something you can't control compound the issues and accelerate the rate it will happen in some cases. Focus on things you can control.

I remember having a brain MRI back in 2015 and they found a cyst but the doctor said it was benign. That was the only thing he mentioned so I guess it's a good thing.