Polycystic Kidney Disease (PKD) Support Group
Polycystic kidney disease (PKD) is a progressive, genetic disorder of the kidneys. It occurs in humans and other organisms. PKD is characterised by the presence of multiple cysts (polycystic) in both kidneys. The disease can also damage the liver, pancreas and rarely the heart and brain.
As far as I know the only complication she had was that she had to have a shunt put in to drain fluid off of her brain and because she lived alone she moved into a semi-independent living situation where there would be people on staff in the event of a problem.
She was in a coma for several weeks after the initial aneurysm and also suffered seizures throughout that time. Her kids did not think that she would make it through but she sure did.
I can't recall exactly how long she lived for afterwards but I think it was over 15 years years. And when she did eventually pass it was from unrelated issues.
I myself could certainly not notice any significant loss of brain function while speaking with her and she must have made a darn good recovery in order to have been able to regain her driver's license so I thought I would share her amazing recovery with you.
I'm sure that it's tough to find general information as it must be a very individual process for everyone. I sincerely hope that your husband makes as great a recovery as what my Aunty Denise did. Best of luck
is that the "you can call me Ray" joke? took me awhile. a returning sense of humor is a great sign.
prop them tootsies up every chance you get, swollen ankles are no fun.
Hugs!!!!
Barb
Wow, trying to remember something that happened in the early 1970's. My grandfather lived in Maine and lucky that a specialist was on hand to do the surgery. They found that his aorta was congenitally malformed and in the wrong place, aside from the aneurysm. I don't remember any mention of him having to do anything after he left the hospital - he was there a couple of weeks, I believe. He was about 71 and not in good health - heavy smoker, bad heart, had had a perforated ulcer 15 years earlier. He was frail for the rest of his life, had to give up his boat, popped nitro pills. I think my grandma kept him alive with all the vitamins she made him take. He died of a heart attack about six years after the surgery, but, remember, that was over 30 years ago and treatments today are much better.
Put your feet up today!!
Lisa
Lisa, a little background about Jim. the surgeon told us that he has "brace yourselves and I have no clue how to spell this word" Arterial slceroious. It is an inherited disease and the surgeon said that he could literally see tons of plaque on Jim's arteries, every where. Both the boys and his brother have to be screened for it and the apt's have already been made. Eating bad food, only makes it worse and lack of exercise, basically not taking care of yourself, which he didn't. So there you have it, he didn't smoke but he might as well have with all the damage that was already there to begin with. He was a lucky man that has been given a second chance in life and we are all so grateful, I'am sure you know exactly what I'am saying.
so enough of this about Jim, it 's time to move on again and get back to PKD, the help that we can give is enormous, so lets do it guys. Remember how much I always will love each and every one of you! I am wondering how Ruth is doing, is there an update on her, I've totally lost precious time and need to know how she is doing. And what about Polykid, has anyone helped her yet?
lots of love,
Norma...
Big hugs!
Love
Heather
So glad that Jim is in Rehab. Sounds like he has a strong will to live. Thats a very good thing for you and your family. May his long road of recovery be a good one.
Love, Jen XXOO