Pheochromocytoma Support Group
A pheochromocytoma is a tumor of the medulla of the adrenal glands originating in the chromaffin cells, which secretes excessive amounts of catecholamines, usually epinephrine and norepinephrine. Extra-adrenal paragangliomas are closely related, though less common, tumors that originate in the ganglia of the sympathetic nervous system and are named based upon the primary...
Then it happened again 7months later while doing noting at home. I called 911 after I took 2nitro which did not help. Again I was told it was a anxiety attack.
I know it is not all in my head or anxiety. I did have a blood test to check for adrenal tumor, but endo said it was not high enough to be pheo,
If you find out what is causing your symptoms, please let us know.
thanks,
bb
I hope you are feeling okay today.
Your symptoms sound a bit like mine were, but with me there is one MAJOR symptom.
When I get a full blown attack, I get a *Rollercoaster* sensation, the same feeling you get when you go down that first dip in a Rollercoaster.
I hope this makes sense?
As far as your Doc saying you only have anxiety, get a 24 hour urine test done to show what is going on.
Best of luck with everything, I went undiagnosed for over 20 Years, (With the last 12 years being shear hell) and can only tell you DON'T GIVE UP UNTIL YOU HAVE BEEN SPECIFICALLY TESTED FOR PHAEO!!!