Phenylketonuria (PKU) Support Group
Phenylketonuria [PKU] is a human genetic disorder, in which the body lacks phenylalanine hydroxylase, the enzyme necessary to metabolize phenylalanine to tyrosine. Left untreated, the disorder can cause brain damage and progressive mental retardation as a result of the accumulation of phenylalanine and its breakdown products.
Hello,
Im Bo van den Bosch and Im doing a school project about the PKU diet. We, my team and I, are looking for way to make the diet more bearable. Unfortunately we cant change the way the nutrition supplements taste so were looking for another way.
We have several ideas. For example making a book with recipes, which is clear and organized. However, we have never experienced what it is like to have to follow this diet. We cant experience the problems have. So we need your help, tell us what bothers you most about the diet. Tell us what your needs are and what you think that will help you most. If you have (new refreshing) ideas, please tell us here.
Thanking you in advance,
Bo van den Bosch
The Netherlands
Im Bo van den Bosch and Im doing a school project about the PKU diet. We, my team and I, are looking for way to make the diet more bearable. Unfortunately we cant change the way the nutrition supplements taste so were looking for another way.
We have several ideas. For example making a book with recipes, which is clear and organized. However, we have never experienced what it is like to have to follow this diet. We cant experience the problems have. So we need your help, tell us what bothers you most about the diet. Tell us what your needs are and what you think that will help you most. If you have (new refreshing) ideas, please tell us here.
Thanking you in advance,
Bo van den Bosch
The Netherlands
There are a few recipe books out already, but they cater to mainly the classic PKU, so the dishes are much too low in phe to do me much good as far as finishing my food for the day, not to mention they often include low-pro ingredients that I don't have. A recipe book for hyper-phe would be nice. I've never actually seen one.