Phenylketonuria (PKU) Support Group
Phenylketonuria [PKU] is a human genetic disorder, in which the body lacks phenylalanine hydroxylase, the enzyme necessary to metabolize phenylalanine to tyrosine. Left untreated, the disorder can cause brain damage and progressive mental retardation as a result of the accumulation of phenylalanine and its breakdown products.
-
I live in NJ and have classic PKUwould be kinda interested in getting in touch w/ other people who have PKU... if in NJ... READ MORE
-
have any of you heard of the new treatment pegpal.. my friend is on it and she takes 2 shoots on monday and 2 on friday... READ MORE
-
Hi my name is josh Miller I am 34 years old. I live in Adrian Mi. I have Classic P.K.U I have been on the pku diet my... READ MORE
-
Hello all,I have an infant with CPKU and is today 9 weeks old. He was diagnosed with CPKU in week 8. Somehow the... READ MORE
-
Hello, Im Bo van den Bosch and Im doing a school project about the PKU diet. We, my team and I, are looking for way to... READ MORE
-
So, introducing myself a bit and sharing my own experiences. I have hyper-phe, as does my older brother. However, my... READ MORE
-
So, after fighting off fatigue and sickness for almost 6 months, I have been diagnosed with hypothyroidism... I am on... READ MORE
-
Mushrooms and Eggplants maybe a natural source of low-phenylalanine protein? Is there types of plants that are... READ MORE
-
Hi i just recently rejoined this group. I left this group originally cause there wasn't much discussion going on etc. ... READ MORE
-
I have been off my diet for three years and i'm slowly getting back on. I just got my insurance card in the mail so it... READ MORE
-
just dropping in to say hi! im new here and trying to check things out and get support
-
my last level was 487 and the one before that was 295. i didn't do anything different except go down to 5 scoops of... READ MORE
-
Does anybody have a problem with memory? I can remember things from sometime back,but when doing things I must one task... READ MORE
-
Hi Everyone, My name is Margaret I am 16 years old and until very recently my dad has taken care of my diet for me. My... READ MORE
-
As my profile says I am 27 and I have a 3 yr old boy. I was half on diet when I got pregnant. I was not planning the... READ MORE
