I am sorry you are having such a bad day. I have had those days where i can't move and feel so helpless. I completely know how you are feeling. It's like your whole world is crashing down. Last month probably was one of my worst. This day is good and my walking is almost normal. I feel that with this disease you have to listen to your body and rest. Decrease your stress level. I had to call in sick an hour before my shift started. I hate to call in sick and then only give them an hour. You might have to take some time off of work??

There are good days and there are really bad days. You should call your neuorologist and explain what is going on. My doctor increased my sinemet so that I was taking in 6 times a day. So far it's working pretty good although every so often I still continue to freeze. On one occassion I needed to use the bathroom and my 8 yr old had to pull my arms to help me to the washroom.

Keep your head up and don't give up. There are better days ahead!!

hope Thank you for the reply. I am taking sinemet & sinemet sa& comptan 5times a day. Plus another dose of sinemet & sinemet sa without the comtan. That's 17 pills a day. This medication regiment was working good for a few months. I see my neurologist next month.
Thanks again.
Just a bad day.
P

I take mirapex, amantadine, stalevo 3x a day. Then my forth dose is stalevo then I take sinemet. I also take a sleeping pill that puts me to sleep but doesn't keep me asleep.

It seems like we both take an incredible amount of medication. I'm going to try out yoga next week. I have been getting a massage once a week. I just ordered a book for a healthy diet (MS diet) as I also have lesions on the brain that they don't quit understand. So I feel if I perhaps start changing my lifestyle I may get some relief. I will keep you posted if it is working for me.

I hope tomorrow is a better day for you!!! Get some rest as tomorrow is a brand new day.

gonnafly, The sun will come out tommorow. Keepping a positive mental attitude when your body is not cooperating is not easy. Quick fix try a warm shower, try a walk, call a friend and ask for help if you need it.Talk to your neurodoc and tell him to adjust you meds. Have a glass of wine. Be confident that we are here to support you when you are down. Feel better Alex

hope I appreciate the support. Today was better, not good, but better. I love that there is a place with people that understand. They are talking about upping me to seven times a day with the three meds. I wont have room for lunch. LOL

his- I would love a glass of wine, problem is I get debilitating migraine headaches. Even a little alcohol sets them off. Havent had a drink in 20 years. Sure could use some Black Velvet on the rocks. Thank you for the support, I truly appreciate it.

Enough complaining its almost football season something to smile about.

P

Gonna, why don't you take your list of meds and what symptoms bother you the most and that they want you to take your meds (list which ones) 7 days a week and go to WebMD and do a post on their "Parkinson's Community" Q&A with Dr. Stacy (who is a neuro from Duke University he used to work for the Mohammad Ali Parkinson Foundation) and see what he says. When you post please start your post with "Dr. Stacy" so he will know that you have a question for him. He is very good about answering - usually every Thursday he answers questions and this is vacation time - but he will answer when he gets back. A great guy and he will tell you what he thinks from the info you provide him. Also the Parkinson Foundation not only has doctors, neuros but phyiscal therapists, pharmacists who answer questions but they take a little bit longer to reply than Dr. Stacy. I always wondered why I don't have a problem with the PD symptoms when I wake up in the morning. My last pill is at 9:00 pm at night and my first pill is at 6:00 am and I am at my best when I wake up in the morning. I found out from reading a response by a pharmacist on the NPF site to someone else's post that they "believe" that if a person still makes dopamine that sleep enables it to store up in the body to be used when I wake up. He also mentioned that exercise like walking takes very little dopamine but doing things with the fingers (typing, buttoning buttons, knitting, etc.) and, of course, strength exercise uses more dopamine. The pharmacist said more but I cannot remember but it was very interesting.

Thanks Deb. I will give it a try. I will let you know how I make out.

Deb - You just gave me the answers to the questions that had me wondering about the things my body does too. I also am feeling my best when when I wake up (assuming I slept well that is). The tremors actually don't start up for about an hour after waking up so I usually wait an hour before taking the Sinemet. That way I can usually keep the doses to 3 pills a day instead of doing 4.

And I have also noticed that walking fast really calms me down and does not make the tremors worse like they are when I run or do weights and toning exercises. Very interesting stuff!

Gonnafly, I am sorry about the bad day, but glad you are doing a little better today. I hope your Neuro can adjust your meds so that things get much better for you.