Parkinson's Disease Support Group
Parkinson's disease is a movement disorder often characterized by muscle rigidity, tremor, a slowing of physical movement, and in extreme cases, a loss of physical movement. The primary symptoms of Parkinsons are due to excessive muscle contraction, normally caused by the insufficient formation and action of dopamine, which is produced in the dopaminergic neurons of the...
I can't recall the order of the stages of grief/loss, but fear is one of them just like anger and denial. I spent a few years there before I moved on. Now don't get defensive, I'm not saying I did anything wondrous or courageous, nor am I any different or better than you. What happened is nothing. My PD didn't progress very fast. Thankfully, with medication (and some will disagree on this and that's okay), I'm actually doing better after five years than I was when I was first diagnosed. It took about four years for the fear to lesson its grip on me, but after years of being focused on what I couldn't do, couldn't do as easily, or might not be able to do in the future, I frankly got tired of waiting for the other shoe to drop and decided to do what I could do as well as I could and forget about it. Ha-ha, maybe that means I've just moved into denial! Just kidding. I'm taking care of myself the best I can and enjoying the now. Who knows what the future holds.
If you'd like to talk more, just let me know. I check in at least once a week as long as there is activity on the group.
L
Like Dav777 above my wife is mostly in denial and does not want to hear much about it. I have gone through PD pretty much alone. Family and friends do not want to talk about it and I can understand that. I do not want to be a downer to them. And, it is hard for them to understand what it is like anyway. Being scared at first is natural. We go from fear to denial, to fear, to denial. In the end, we just live our lives day to day. We play the cards that are dealt us. We think of the many worse things that could have happened, and there are far worse things than PD.
Exercise really does help. It loosens the muscles. It helps with the muscle stiffness. You have to keep moving if you want to keep moving. Sometimes, when the muscle stiffness is bad you just exercise through it and they eventually loosen up and you feel better. At least that helps for me. The Davis Phinney Foundation has exercise videos for PD but any moving helps.
I hope that I did not bring you down. Just keep on, it is all that any of us can do.