Hello Maya,
Sorry to hear the trouble your Mom is having and it sounds like it is pretty hard on you to see her having so much trouble. I know exactly what she is going through and it is miserable and very frustrating.
I don't really know how you can help her other than to let her know she is not alone when it comes to this. Others of us with PD are also going through the same thing. The best thing she can do is to keep walking and moving. Very important so she doesn't get even worse and the muscle starts to deteriorate. Just keep encouraging her and let her know she is not alone in this and neither are you.
Joanee

dear maya
it must be very hard to see something is happening and u can't do anything about it ,,but be brave and find a way,get the second opininon,see another nuro doctor ,maybe she has to change her med,don't give up

Maya: This sounds very sudden for such a big change, but I can only relate to what my Dad has experienced. Normally his changes with PD have come on much slower.

I do know that my Dad felt very exhausted and depressed and just didn't have the strength to get up and go.

Now with anti-depressants and if I can help him loosen up his joints and stretch a little before walks, he still can get up and go. Not the miles he walked before, but every little bit counts and makes him feel so much better afterward. Depression is common with PD, especially later in life I've been told by may doctors and can really take you down physically as well.

I hope you find some answers and she's back up and going soon! Cathy

Maya- I had a similar situation a little over a month ago- with very sudden weakness in my left leg. It gave me a horrible fright and it took me a few weeks to suspect the culprit- a medicine I was on, baclofen. I've since quit the baclofen and have returned to my 'normal' symptomed self.

I read up on Azilect and it appears that it may cause difficulty moving, joint pain, muscle pain... discouragement- and many other things... perhaps this might be the contributing factor to your Mom's sudden not being able to walk.

Here's a link to the medication side effects...

http://dailystrength.org/treatments/Azilect/side-effects

I have a tendancy to believe that something that pops up all of a sudden, it's probably not disease/disorder related but most likely medication related. I would be concerned, if I were in your shoes, that the doctor just increased her Azilect to 1 mg and that may make her condition worse. It may be worth talking with her and seeing if she can describe what's new with her symptoms that came on with this sudden not walking- and go back to the doc and suggest the Azilect may be the problem. She could go off it and see if she gets her old legs back- indicating the Azilect was the problem.

Don't be afraid to question medications with the doc. My baclofen fright was very upsetting and I suggested to my doc that it might be the culprit and he concurred. These know a lot about this disease, but everyone does not respond the same to medications and docs should respect you for staying informed of meds and questioning things like this when it's a sudden drastic change for the patient.

Good luck and keep us posted on how your mom is doing!! Many ((((Hugs)))) Connie

Thank you so much for your replies!

I got up this morning and first thing I did run to computer to see if anybody commented on my topic.
My mom can't read English (she is russian speaking only. We are from Kazakhstan), so I translated her all your replies and she started to cry. She said that it is so obvious that you all understand her the best. SHe decided she will not give up and keep moving. I agree she is so much depressed now than before. Also Connie I think you are right it could be Azilect. Even she is on it for three month or so it might accumulated this effect. I thought at firts she had a stroke or something, she said "no" . It's hard on her. SHe is away from the rest of our family thousands of miles away for over a year now. She has no friends here in Boston, she like one of my neibour but can't communicate because of language barrier. I work long hours and seven days a week and she stays alone. I got dish network with several russian chanels and that keep her informed with news etc.
Sometimes I feel depressed because no matter how much I try the things are not getting better. But I have to be strong and keep telling mom " we will fight this back". Sometimes I believe myself, sometimes I don't but I keep saying this to her. May be more I say more I believe myself and keeps me and her moving.

I guess I wrote too much here.

I find DS and you all so close to us. It's literally impossible to tell everything to any friend and expect that they understand fully what I'm talking about. I feel I can't blame them for that.
But here in DS I feel that my words are heard .

Thank you all again!

Maya

Hello Maya, from my clinical experience, when a symptom increases or appears suddenly, it is almost certainly either caused by too much medication for too long, or some other event/circumstance outside of the disease.
Azilect and Sinemet combined have very potent adverse effects, and that is the most likley reason for your Mum's challenge.
Reducing Azilect rather than incressing it would most likley have a beneficial effect, and make the physical therapy more effective.
Good luck in explaining that to her doctors however - I have tried for years and they just don't get it.
I wish your Mum well as I have seen many people go through this. The good news is that most have come out well on the other side.
Love and best wishes

Dear Maya. Your mom must be feeling very scared. I think would try to examine why all of a sudden this has happened to her.

Pd is a slow creeping disease, and for this to suddenly stop her walking, i would be asking what has recently changed, with her medication, with her diet, with her anything that has changed.

Just maybe it is an increase with the new dose of azilect, there must be some sort of trigger that has started this .

I so sympathise with your mom crying, and the alonesss you feel with this disease .the loss of independence is terrible and just easy functioning that everyone takes for granted, is so hard to deal with

i dont think that anyone understands the depths of how pd affects you, its with you every waking moment, every step , every movement, its a total bitch of a disease.

im praying for a cure, always hoping

tell your mom to stay positive, that is the only thing a pd person can do