Parkinson's Disease Support Group
Parkinson's disease is a movement disorder often characterized by muscle rigidity, tremor, a slowing of physical movement, and in extreme cases, a loss of physical movement. The primary symptoms of Parkinsons are due to excessive muscle contraction, normally caused by the insufficient formation and action of dopamine, which is produced in the dopaminergic neurons of the...
They are doing a clinical study on Rifampin to cure MSA, but the exclusion criteria are the usual strict requirements and they only end up with 30 or 40 subjects because of that.
It's believed that Rifampin or it's derivatives actually reverse the protein folding process with Alpha-Synuclein. so the MSA trial is taking only people with the most severe form of Prakinson's and limited life span for study. I read of this a couple of years ago and out of probably 10 Doctors that I asked to prescribe it off label, not a one of them would do it.
I would certainly ask your Dr. if it's an option being that it's an powerful antibacterial.
I think out of curiosity, someone else , or two or three should have the test also, any takers???
Zlatica
Im going to take the antiobotics for this anyway, as an experiment, even if my neuro laughs at me . If it works, well WOW, if it doesn't, no harm done.I have been reading it is very hard to get rid of this bug with antibiotics, due to the nature of antibiotics becoming not that effective these days, as viruses and bugs etc, are becoming antibiotic resistant.
As my partner is currently taking these meds, for the bug (as he has it) He is due to come off them in 2 days. I will take him for a breath test to see if he has got rid of it. Then in 3 months I will take him again to see if it is gone for good. If not, well I will try the natural method being deprive this bug of sugar etc, introduce apple cider vinegar and lemon juice into his diet, to alkalyine his system.
Me next, if it works on him (the healthy one) it will work on me, if I have this.
Just trying thats all.
I never put my full faith into a Doctor/Neuoro. Still think they dint give a shit.
My full faith is in myself, as I am the one who wants to see me cured before anyone else.
Beekeeper
6 months later I took another breath test, still positive. Get treated with antibiotics again. Took a 3rd test, another 6 months later but before I went for the test, I drank Paw Paw leaf juice every morning for 14 days. Paw paw or papaya leaf is a natural de-wormer. My test was finally negative.
My bloating symptoms persisted for 3 years until I did a gallstone cleanse and passed out many gallstones. See my post for pictures.
They tested me for nothing.... I found out most drs back then refused to run tests because it would cost the Pharmacies companies millions due to the fact that H Pylori is the number one cause of many problems. It is the only ONLY cause of Ulcers. And leads to other complications. The classic complications are bloating, nausea, bathroom troubles, acid reflux, feeling of fullness, etc. It can lead to stomach, pancreas, colon, esophageal cancers. SCARY. You can only imagine how freaked out I have been.
I was finally diagnosed/tested in 2010 after losing a massive amount of weight and had extreme pain to the point where I could not release my knees from my chest. I was in fetal position and Im a strong mom of four boys. The pain was horrendous. The dr was very nice and very smart she knew right away what was wrong, sent me for an endoscope and biopsy and it came back positive for H Pylori. I was put on prev pac twice before I was finally negative or so they say. I caught it back again and I am totally freaked. It has been left for a long long time because the new dr refuses to do anything about it, She must be one of those who are either clueless or trying to protect the pharmaceutical companies. ,,, a scary thought.... She said we had to live with it and stress brings it on.... FALSE! Completely incorrect.
I am waiting for my appointment with a new dr tomorrow morning. IT has all been such a scary experience.
A week ago I started experiencing heart palpitations and flutters as well as poor circulation/numbness/tingling in the hands and feet. Also pin feelings too, tremors, electromagnetic sensations inside my body, joint pains/muscle pains and weakness. I also have had a swallowing problem for 15 years. I read that H Pylori has been linked to many autoimmune diseases which my mother has and she also has very bad ulcers, has pancreas problems and has had her gallbladder taken out. She also has fibromyalgia. I told her I think she has H Pylori she has never been tested can you believe that? I am awaiting her results. I was cleared of this bug in January 2011 until a few months ago when she came to visit me and she was sick and did a lot of throwing up I had to clean it up, I have no idea if she used my tooth brush/mountwash and would not be surprised. I honestly think I caught it back from her. My mother has had these symptoms for 20+ years and they continue to cause more problems for her, she is now disabled with multiple autoimmune diseases.
I had all the symptoms of MS- scary thought.
I honestly believe the research and the article is right, H Pylori is connected with all the other health issues that pop up during or after infections. I am just praying I am not too late and the damage is reversible. I have to try a new antibiotic therapy pack now because the prev pac has failed me and many others. There are two new ones out one is called LOAD and the other is quadruple therapy combined with Bismuth. I hope I can get started on those tomorrow!
Let me know if anyone else has had similar issues.