After 7 years on the Sinemet, it seems odd that he would just now be getting hallucinations. I have read that this happens with PD and with the PD meds. I wonder if they lowered the medication if it would help.

I am having auditory hallucinations. I keep hearing music. When I am home along it can be unnerving. I see flashed of things, but I don't know what that is.

I don't know what will help. He has been ok this week and he mentioned that he doesn't have fun at the trailer because of the hallucinations. I just hope he doesn't get it in his mind that he'll have them again when we go back.
I wonder if he is just confused because it is a different place and he can't remember where things are at night and the anxiety is brings it on.
I hope we get a chance to go back before the season is over.
He went to the speech therapist yesterday and we are starting some voice exercises.
|Hearing music would be annoying. Could you put on a TV to drowned it out or does it help?

I am sure he is frustrated at a different place and getting confused at where things are. Maybe the stress does bring it on for him. Will he do breathing exercises to try and relax to see if that helps? I hope you get to go back and try again.

I do not have TV, but maybe if I put on some music that I like, it would drowned out the other.

Is you husband also taking a sleep medication? I used to be a homemaker for the elderly and one of my clients had hallucinations just like you described from her sleep medication. She did not have PD. My late father-in-law did have PD and he had hallucinations from PD itself or maybe one of his meds.

I have been on Sinemet for several years and have had no hallucination problems but I have had plenty of weird dreams at night.

He only takes Sinemet and no sleeping aids
The night before last he said he saw a dove in the bedroom. He told me the next day.
However last night he went to bed early and I went an hour and half later. Around midnight I heard the frig making a strange noise and went to investigate so I had the light on in the kitchen.
He woke up to see what I was doing and then we went back to bed, but he had to go to the toilet, came back to bed and then got up again to the toilet. He was sitting on the toilet and said that the boards are dirty. I said there isn't any boards, but he said it was unfinished. I got him back to bed but he couldn't sleep and started shaking so I gave him some Tylenol to help him get to sleep as it usually helps (doesn't take on a regular basis).
Anyway, he couldn't sleep and got up and slowly walked to the living room which is just outside the bedroom and looked around the room He said that it the room didn't look right, and kept looking around and around. I said to sit on the recliner and try to go to sleep and I laid down on the couch.
He then said could you bare with me for a minute, so looked around the room at the object and finally said that things looked normal.
He sat in the chair and said he'd be okay now, so I went back to bed. He was okay the rest of the night.

At least he knew things were real.............. but it was a little upsetting, but I tried to remain calm...... What else could I do?
Did I handle it right?

Sounds like you handled it very well. I think it is important to keep the person as calm as possible.

Might talk to his doctor about this change he is going through. They maybe able to adjust some meds to help stop or at least slow down the hallucinations.

Maybe the low light at night is forcing him to fill in the blanks that the night time lighting leaves out. They make good motion detector light switches which might help. good luck and good health. Alex

I have experienced a few hallucinations, mostly auditory (but I take several medications with Sinemet). They seem to come on when I am stressed, overtired, medication timing is off, or I am dehydrated. By the way, you handled the situations great, in my opinion!!!! I wonder, if when you travel to the trailer, perhaps hubby is dreading getting up at night and maybe limiting fluid intake? I hope you can figure out what is causing this, seeing things (and hearing things) is very disturbing when it happens to me.

.
We see the MDS next week for his Botox but we don't have time to talk to the doctor as he has one apt after another just for Botox .
I've talked to him briefly several times about other things during this apt so I don't want to push it as we don't have time to really get into it. I also told him in July at the clinic apt. about the hallucinating and he thought it was the medication. Also he has problems with sleeping during the day, but due to his heart condition, they can't give him anything for it.

His family doctor said it the hullucinations get worse, then he can give him something that won't affect the heart but wanted the MDS to be in on it.
I am hoping that he can give him something even if the MDS isn't in on it as we don't see the specialist until Feb.
They give reports back and forth so maybe he can send a recommendation to the MDS so we don't have to wait.

Wow, I started having hallucinations in May. The Dr. added 1 50/200 leva pill at bed time and they started. It is always when I first wake up either from the couch to go to bed, getting up during night to go pee or in the morning. At first they were stuffed animals, or little girls that moved in a circle around and round with sparkles and pretty colors. For real, once I saw the Grateful Dead bears dancing with sparkles. They are always based on a real object. Then I had a big one in broad daylight. I woke up one morning and there was a roofer sitting on my neighbor's roof watching me sleep and when he saw that I saw him he was embarrassed and turned away. I thought it might be a hallucination so I left the bedroom and came back in and pulled the blinds open and there were other roofers climbing on top of my neighbor's roof. When I yelled for my husband he said no the neighbor wasn't getting a new roof. So I knew it was a hallucination. The roofer is always there eating lunch. I also lately have cats running around on my window sills. A man is on stilts in my bedroom and when I investigated it was my bedroom door.. They are very interesting but I no longer let myself watch them because they are not real. The roofer has started coming into my room now. Only a couple of times were they scary. They never talk but I know what they are thinking by the expression their faces.

My doctor is cutting down all my meds. I am no longer on the clonapepam, first cut my ER in half and now stopped taking the ER and went back to regular leva at night. Im weaning off of the Neupro patch.. Next will be the Azilect. If I cannot control with the meds that means it is the PD. I found out a lot of good infoon on Hallucinations on the NPF site. I also see black and white material hanging from the ceiling.

I would look into it as soon as possible for your husband Dr. Okum says it is best to get rid of them as soon as possible. Before the hallucinations I used to have bugs fly by me out of the corner of my eye. They say that is hw they start. If it is PD I read an article that the psychosis comes next.

I just keep my eyes closed. i also see figures outside my windows and I'm on the second floor. lol something going on al the time at my house. lol

Dear Lynnie, My mother-in-law was having significant hallucinations, so much so that she tried to run away form the facility she was rehabbing in. When her Sinemet was lowered ,she stopped having hallucinations. Sinemet is a med that actually produces more side effects the longer you use it. Be sure to bring this to the attention of the neurologist as soon as possible. The hallucinations and delusions are upsetting to both the patient and the caregiver. Best to you! Beth

Sometimes a change in environment is very difficult on someone who has parkinson's. I note as a nurse who works with parkinson's, alzhiemers, huntington's patients that a change in their environment causes them to hallucinate, have confusion and other symptoms due to the nature of the illness. We find this quite prevalent.

Just a suggestion! I hope you and his neurologist figure it out.

I have had hallucinations but that was a direct effect of an intolerance to morphine. It's scary when you have hallucinations!

Visual hallucinations are a well recognized
unwanted effect of levodopa, which may easily be
overlooked. It is important to recognize this symptom
as it is potentially reversible. Hallucinations are often
relieved simply by reducing the dose of levodopa;
however this also often decreases the effect of
levodopa on the motor symptoms of Parkinson's
disease. " An alternative method of managing
levodopa-induced hallucinations is to either totally
discontinue the levodopa treatment or to reduce the
dose and introduce L-tryptophan.""'7 However the use
of other dopaminergic drugs, such as bromocriptine,
has not been shown to be useful.14'15 Bromocriptine
ameliorates the on-off phenomenon in some patients,
but psychiatric symptoms may well become worse.'8
The use of dopaminergic blocking agents such as
phenothiazines and butyrophenones may decrease
some of these side effects, but since these agents block
all dopaminergic receptors unselectively, it is probable
that the parkinsonian symptoms will be exacerbated

.('Division ofCell Biology, M.R.C. Clinical Research Centre, Northwick Park Hospital, Watford Road, Harrow,
Middlesex HA 3UJ, UK.)

BT

My mother-in-law was Dx'ed with PD, and had halluciations. Curiously, she knew what they were and could describe them in great detail even while they were going on. (They were of 'people coming to get her' and likely rooted in her work with the Polish underground in WWII.} One day she 'saw' one of these groups coming through the woods behind our house. I handed her a pair of binoculars, figuring that the different perspective might disrupt the hallucinatory processes. She looked, then put them down. Contrary to my expectations, the stalkers seemed closer.

It is now 20-some years later and I am the one with nasty Dx. So far, I have had only the annoying tremor and the opposite of hallucinations -- the colorful, detailed, story-like dreams that frequently come with PD.

Brains are incredibly complicated circuits that sometimes seem to have minds of their own.

Lynnie, know that we are all with you.

Beekeeper