Parkinson's Disease Support Group

Parkinson's disease is a movement disorder often characterized by muscle rigidity, tremor, a slowing of physical movement, and in extreme cases, a loss of physical movement. The primary symptoms of Parkinsons are due to excessive muscle contraction, normally caused by the insufficient formation and action of dopamine, which is produced in the dopaminergic neurons of the...

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Brain & Nervous System
/ Parkinson's Disease Support Group

fatigue or lazy

hisknobs
hisknobs
fatigue, insomnia, meds, excercise. I find the heed to nap during the day the inabillity to fall asleep at a resonable time of night, and feeling exausted early in the morning when I should be getting up for work. I never know what supprise symtoms are going to meet me each day. We all have good days and bad. Any suggestions on how to find a comfortable balance.
aliveo
aliveo
HI HISKNOBS,
RE- FATIGUE AND LAZY.

SPEAKING ONLY OF MYSELF, I THINK, FEEL AND BELIEVE, THAT THE 'TRADITION' OF LYING DOWN IN THE AFTERNOON, PLAYS STRAIGHT IN TO THE HANDS OF PARKINSON'S, ( I'VE BEEN THERE, IT DOES'NT WORK) AS WELL AS BEING HABIT FORMING.

ENERGY CREATES ENERGY, THEREFORE I FEEL IT IS VITAL TO BE ACTIVE.

I AM OFTEN ASKED WHY I STOPPED USING SUBSIDISED TAXIS, IN FAVOUR OF PUBLIC TRANSPORT.
THE REASON - IT WAS MAKING ME LAZY.

A COMFORTABLE BALANCE -
IN MY OPINION THERE AINT ONE.

I DEAL, MANAGE AND FIGHT PARKINSON'S CONDITION, WITH EVERYTHING I HAVE.
TOTAL COMMITMENT, FOR ME, NOTHING LESS WILL SUFFICE.

NOT SURE IF THAT ANSWERS YOUR QUESTION HISKNOBS. IT WORKS FOR ME.

MAINTAIN A WINNING POSITION.

.
deleted_user
deleted_user
Sometimes i am simply physically unable to walk due to balance, rigidity and pain issues. Then the fatigue on top of that, and i have to nap. It is not laziness. Yes we must try to stay active but there times when the body demands rest.
deleted_user
deleted_user
Yes, I totally agree with Aliveo ,keep active and fight fatigue.After I take my medication for PD ie ( Azilect ),I feel drained so I sit down for 10 to 15 mins. and then proceed to carry out my daily objectives and my exhaustion disappears. One thing I will advise is not to over stretch your energy levels by not taking a little rest in between heavy work loads , this helps to keep away total fatigue.Good luck with you finding a better life balance. Slan Scuba.
peachybum
peachybum
Dont know how old you are, but l find that life after age 50 means l need a nap sometimes... pd or no pd
deleted_user
deleted_user
What PD has taught me is to listen to what your body is telling you. If I put off rest, I end up paying for it later. I don't think it is a matter of laziness. We have a lot stacked up against us i.e our medications, the energy expended to complete simple tasks, and muscles that are not allowed to relax. I am on disability because of PD, and I have the ability to rest at will. I feel bad for those of you who do not have that freedom
deleted_user
deleted_user
Sometimes I know it is the direct result of the meds side effects, and other times the Parkinson's itself. But if I keep not responding to the signals for rest I'm getting I find my Parkinson's symptoms tend to worsen and no matter how you frame it, I don't get to go back a level once I've moved forward with symptoms. As soon as the meds wear off, the sum total of whatever happens without them greets me. I think too there is some level of apathy that is Parkinson's related for me. I don't know about others but I can see what I should do but find it overwhelming to carry it out. That I can't seem to multitask any longer is a big frustration for me. It seems to take eons of time to accomplish the most simple things between the thought to do it and the action it takes to make it happen. On the other hand there are days when I "drive" myself only to pay the next day with a totally wasted day of recuperative rest, making me question the value of pushing too hard. One thing I do know is that exercise is as necessary as eating and sleeping for us to slow the progression as much as possible. But like all the other things I am learning to do as a single unit, exercise seems to demand more energy than ever, and to exercise I have to pay with a "unit" of rest as well. So some active time is given up to exercise in the hope of building some longer-term energy over time by increasing muscle mass and strength to keep limbs and core straight and toned. It has only been 4 years for me so I am no expert. I'm so glad to have found this one group, where I see so many good thoughts and experiences to exchange from others. It helps so much to realize so many of our symptoms and responses to treatments are similar.
aliveo
aliveo
REPLY TO NEWNONIE.

I NOTE YOUR MENTION OF INCREASING MUSCLE MASS.
BEWARE ! HAVING DONE WIEGHT TRAINING FOR SPORT, AND KNOWING WHAT IS REQUIRED TO BUILD UP MUSCLE MASS, I HAVE FOCUSSED MY ATTENTION ON 'MUSCLE CONTROL.'

INCREASING MUSCLE MASS WITH WIEGHT TRAINING, WOULD TAKE TOO MUCH OUT OF ME, AND THE RECOVERY TIME BETWEEN SESSIONS WOULD BE TOO LONG.

I DO YOGA, TAI CHI , TABLE TENNIS AND BOWLS, TOGETHER WITH PLENTY OF WALKING, THE VALUE OF WHICH SHOULD NOT BE UNDERESTIMATED.

I HEAR WHAT YOU ARE SAYING,
FOR MYSELF - THE HARDER PARKS COME AT ME -
THE HARDER I GO AT IT.

.
deleted_user
deleted_user
I hate lying in bed after having a busy weekend or just not feeling like getting out of bed because the meds just have me fuzzy. I do feel better usually after I have gotten up and gone to town and gotten emersed in some activity at our business. I need to start walking I know this would help.
aliveo
aliveo
HI SISTER,

PLEASE SEE MESSAGE I HAVE JUST SENT YOU.

ALIVEO / STEWART