HI CMSTAND TALL,
STRANGE AS IT MAY SEEM, I DID GO THROUGH A PERIOD LIKE YOU DESCRIBE. I JUST BEGAN MANAGING BETTER DISPITE AND INSPITE OF THE TREMOURS. WE DO NOT GIVE IN WE JUST FIND WAYS TO MANAGE BETTER.
I HAVE TO SAY THAT BY FAR THE WORST SYMPTOM IS BRADYKINESIA, STIFFNESS AND UNABLE TO MOVE.
I CERTAINLY DID NOT FEEL NORMAL, NOTHING ABOUT PARKINSON'S CONDITION IS NORMAL AND THE TREMOURS WERE ALOT WORSE THAN ANNOYING, LET ME TELL YOU.

I've got used to the tremours. Although I get self conscious about them around people. Dyskinesias however, I am not a big fan of.

Phil, Can you explain a little about the dyskinesias? Isn't it caused by the PD drugs and not actually be PD? How long after going on the drugs does the dyskinesias start up? Does everyone eventually have that issue?

DYSKINESIA IS THE RESULT OF TAKING DOPERMINE REPLACEMENT MEDS OVER A LOND PERIOD, BEGINS USUALLY AROUND THE 7 YEAR MARK. IT CAN ALSO BE CAUSED BY BEING OVER MEDICATED. NO NOT EVERYONE GETS THIS. I HAD HYPER DYSKINESIA, HAD DBS IN OCTOBER 2009.

Hi CM, I had tremour from the start, though only my right hand. It stayed that way for quite some time.... it changed over to my left hand after 8 or 9yrs.... and now spread to my jaw,arms,legs,tongue,head... At times they all kick-in together, but it's usually 1 or 2 in the main..
It's very much part of me and have ways of coping and how to deal with it, even though it catches me out many times so even me at this far on are still learning. It's unpredictability of it that's sooo annoying & frustrating... but I just dig in those heels and think "No way ya gonna beat me!"... I'll fight this with every thing I've got and never surrender.

You'll just find in time you're own way of coping, please don't despair or get despondant be strong & true to yourself.

Yours Sincerely Dirky !!;O))xx

Aliveo summed up the dyskinesia thing quite well. For me it's an uncontrollable writhing of my head and torso along with facial dystonia. It is like someone flicked a switch though...I'll instantly go from dyskinesias back to tremours. I was diagnosed in spring 2007 and am starting to get tight muscles and pill rolling on my second side.

I'm sorry for straying from the tremour topic. I have strong tremours on my left side which will shake my whole body. I'm right handed & I'm sure they will become more of an issue when I start or if I start to tremour on that side as well.

hi CM Standing, I have never had tremours and have had parkie for 21 years, so it is different for all of us. But I do get Dyskinesias a fair part of my day but it doesn't bother me know as I have learnt to cope
with it now. We all find our own ways of coping with Parks and I hope you find yours.

I've only been around a year (it seems like forever) and I've gotten used to the tremors although it helps that I am on the Sinemet. My tremors started in my jaw (didn't know what it was about a year or so before diagnosis) and then to my left hand (this is what made me go to dr.) then leg and I also have inside tremors. With the meds they are hardly noticeable on the outside. Although the tremors were my first sign of pd it is like Aliveo said, at this point In time I cannot tolerate the bradykinesia/rigidity. My arm stiffens up, my toes, my fingers and my neck and back. IT HURTS. And again at this point in time that is what the meds relieve.

I had shakes from the start, and it had nothing to do with my taking medication.

short answer to your question," do you ever get used to the shaking" my answer is NO

Im with you Phil, dyskinesias are not good

Personally I never got use to the tremors. I, too, became very self conscious of them and found myself sitting on my hand to hide them. I even resorted to wearing wrist weights to control my shaking. I described my tremors to family and friends like having an itch that you could never scratch. To me they were a constant annoyance and this was one of the reasons I opted to have DBS surgery. When my DBS gets a reprogramming and I see how bad my tremors would be without it, I know the surgery was worth it.

This is going to sound strange but at this stage with me i notice when i don't have the tremors more... it's like my psyche is trained to ignore them now so when i am perfectly still i think woah no tremors... i do however notice the stress induced ones and the ones i have in public more..

When my shaking was worse I never got used to it. It wasn't until I was able to improve my condition through exercise and wholefood nutrition that I saw a dramatic change and now have less frequent tremors and find it manageable.