Parkinson's Disease Support Group

Parkinson's disease is a movement disorder often characterized by muscle rigidity, tremor, a slowing of physical movement, and in extreme cases, a loss of physical movement. The primary symptoms of Parkinsons are due to excessive muscle contraction, normally caused by the insufficient formation and action of dopamine, which is produced in the dopaminergic neurons of the...

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hisknobs 10/24/2015

I start DBS in NYC at Mt. Saini Hospital this week. Monday a sedated MRI and Wed. First electrode implant. I feel brave and also concerned All of my research speaking with pwp who have had DBS almost all say that would do it again. Most whish they had done it sooner. I have had PD for 12 years since dxd and had symptoms before for several years undiagnosed. The doctors tell me that I will be able to give up, 16 pd pills a day to one or two Thank you all in advance for good whishes The surgeon who is doing my operation has done over 900 of these. So I am lucky that I am seeing one of the most experienced. In NY area there are several experienced, mds neurologists teams to choose from. Looking foreward to not shaking, no more dyskinesia, and stiffness to go away. A good nights sleep on a regular basis will be the bonus. Wishing all of my friends here courage good will and freedom from the limitations symptoms place on our lives. To my star trek fansThe Borg say " resistance is futile you will be assimilated" Alex

slashman48 10/25/2015

Wishing you good luck on your operation and hope everything goes smoothly. I have had PD for about 5 years and am taking 800 mg of Carbidopa/Levodopa a day and doing good so far.

hope4acurenow 10/25/2015

Wishing you the best and hoping you have a quick recovery. Thinking of you and don't forget to let us know how you are doing.

take care,

Christina

Zlata 10/25/2015

Hi Alex the dissection is rite for you. You have spend lots of time on research. Good work body . The rest of IT will be breeze .Hang in there you feel better soon. Just remember it may take year to adjust it , so be patient it will be OK .

terrapinstation945 10/26/2015

ahhhhhh......resistance is futile! DONT FORGET YOUR NAME! hahaha boy wouldnt that be great if you could reduce your meds to a mere pittance of what your having to take now? Good luck with that. Im afraid you have bigger cajones than i do. Im confident it will go smoothly for you. Heres to tying knots!

BT

hope4acurenow 11/04/2015

Thinking of you today, I hope you are well and the surgery is done!!

take care

aliveo 11/05/2015

HI ALEX,

THIS IS YOUR GOOD MATE FROM DOWN UNDER AUSTRALIA, BIDDING YOU GREETINGS.

I WISH YOU EVERY SUCCESS WITH YOUR UP COMING,
DEEP BRAIN STIMULATION PROCEDURE.
I THINK, FEEL AND BELIEVE IT IS THE RIGHT THING TO DO.

YES INDEED, I FEEL, THINK AND BELIEVE THAT YOU HAVE MADE THE RIGHT BRAVE DECISION ALEX..
I AM 100% BEHIND AND BESIDE YOU.

ALEX, SHOULD YOU NEED ANY FEED BACK ETC FROM ME REGARDING DBS AND THE RECOVERY THERE OF, PLEASE FEEL FREE TO ASK. AND DO KEEP ME INFORMED OF YOUR OUTCOMES AND PROGRESS, WHICH I TRULY ANTICIPATE AS BEING IN THE POSITIVE.

I WON'T WISH YOU GOOD LUCK, AS LUCK HAS NOTHING TO DO WITH IT. I WILL SAY GO WELL MY FRIEND, AS I LOOK FORWARD TO YOU AND I BECOMING KINDRED SPIRITS.

MAY YOU DEVELOP AND MAINTAIN,
A WINNING POSITION.

STEWART / ALIVEO

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debfromnj 11/07/2015

God bless Alex!!!! Everything will be fine!!! People swear by it. Let us know "step by step" lol what, where and when. Details, details!!

hisknobs 11/12/2015

Thank you all for the warm whishes of support. One down 2 to go. 2nd implant is on November 23, They keep me in the hospital just one night. The anesthesia takes its toll with unexpected side effects but I am confident that when its all done and I am turned on they will just be a fading memory. I am on leave from work with full pay but I am getting antsy just sitting around and resting. Not in my nature. I borrowed a friends dog to hang out with me while I rest. Belle a golden Lab retriever is happy to play therapy pet for a day. I feel strong. My surgeon has done over900 of these operations.

hope4acurenow 11/13/2015

Thanks for the update!

terrapinstation945 11/13/2015

Excellent news!

Brer T

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