Parkinson's Disease Support Group
Parkinson's disease is a movement disorder often characterized by muscle rigidity, tremor, a slowing of physical movement, and in extreme cases, a loss of physical movement. The primary symptoms of Parkinsons are due to excessive muscle contraction, normally caused by the insufficient formation and action of dopamine, which is produced in the dopaminergic neurons of the...
I should probably introduce myself first. I'm married since 1982. Just pasted my 53rd birthday. Have three kids and two grand-kids.
Last October I noticed my left had had more difficulty typing than normal. Figured it was just a passing issue. It wasn't. I would hit letters twice without meaning to. I'm a writer, and participate in National Novel Writing Month every November when you work to write a 50K word or higher novel in a month. Last Nov. I could tell something was wrong. Timed writing contest, I could only type around 200 and something words in 20 minutes compared with in the 400's average previous years.
Then my left hand started tremoring in my fingers. Over time, it worked its way up to my arm. Last spring I went to see a doctor, and he said he believed I had PD, though we needed to do an MRI to verify it. He prescribed me Senimet to see whether or not it helped.
At the time, not knowing much about it, I didn't feel like I was that bad off, and didn't want to take medications I didn't need. So I sat on the prescription. But in the months since then, the tremoring has grown worse, and once I looked at symptoms, I see I have several others that I didn't realize were related. So last Monday I finally went and had the prescription filled and started taking it. And it has seemed to have helped, but hasn't removed all the symptoms and tremors.
That being a little of my history, I had a question. Maybe one asked before, but noticed it wasn't brought up in a related thread last week.
I've been reading on the potential benefits of using coconut oil in relation to PD, due to the ketones it produces to provide fuel for brain cells dying do to lack of insulin to metabolize glucose in the brain.
I'm wondering, have any of you here tried using coconut oil, the virgin and cold pressed kind, as a treatment? And if so, how has it worked for you?
It appears research on this is scant, though a study of ketones and PD is in the works, but getting the funding is difficult due to no one is likely to make anything off of the 5 million it would take to do the study.
Until then, I decided it can't hurt to use coconut oil myself. The worse it could do is make me fat. At 160 lbs, that isn't a big worry right now. Today's the first day i've used it and it *seems* I'm having a little easier time typing right now that I've had in a while. Don't know if that is the week plus on Sinemet having more effect or the coconut oil.
But if anyone else has used it with or without success, I'd be interested to hear your experiences.
Last October I noticed my left had had more difficulty typing than normal. Figured it was just a passing issue. It wasn't. I would hit letters twice without meaning to. I'm a writer, and participate in National Novel Writing Month every November when you work to write a 50K word or higher novel in a month. Last Nov. I could tell something was wrong. Timed writing contest, I could only type around 200 and something words in 20 minutes compared with in the 400's average previous years.
Then my left hand started tremoring in my fingers. Over time, it worked its way up to my arm. Last spring I went to see a doctor, and he said he believed I had PD, though we needed to do an MRI to verify it. He prescribed me Senimet to see whether or not it helped.
At the time, not knowing much about it, I didn't feel like I was that bad off, and didn't want to take medications I didn't need. So I sat on the prescription. But in the months since then, the tremoring has grown worse, and once I looked at symptoms, I see I have several others that I didn't realize were related. So last Monday I finally went and had the prescription filled and started taking it. And it has seemed to have helped, but hasn't removed all the symptoms and tremors.
That being a little of my history, I had a question. Maybe one asked before, but noticed it wasn't brought up in a related thread last week.
I've been reading on the potential benefits of using coconut oil in relation to PD, due to the ketones it produces to provide fuel for brain cells dying do to lack of insulin to metabolize glucose in the brain.
I'm wondering, have any of you here tried using coconut oil, the virgin and cold pressed kind, as a treatment? And if so, how has it worked for you?
It appears research on this is scant, though a study of ketones and PD is in the works, but getting the funding is difficult due to no one is likely to make anything off of the 5 million it would take to do the study.
Until then, I decided it can't hurt to use coconut oil myself. The worse it could do is make me fat. At 160 lbs, that isn't a big worry right now. Today's the first day i've used it and it *seems* I'm having a little easier time typing right now that I've had in a while. Don't know if that is the week plus on Sinemet having more effect or the coconut oil.
But if anyone else has used it with or without success, I'd be interested to hear your experiences.
One bit of missing info in that thread is to avoid any hydrogenated coconut oil (any hydrogenated oil, actually). It is the virgin, organic, cold-pressed kind that contain the most medium chain triglycerides in it that make the difference.
Zlatica
No, just the opposite. Organic, cold pressed is good. Avoid hydrogenated coconut oil, it contains the bad fat.
Thanks for the input.
They are telling their patients it's the newest fad. Sorry