Oh, Normac, I know how lonely it is when your partner seems disinterested and too wrapped up in his own problems to be of any help for me.(by the way, I also have had Parkinsons for over 5 years and feel very alone in dealing with the reality of that.)
Boy, do I get discouraged when thinking about the future! My husband will do things for me but I feel he resents the time it takes for me to do things and it is more like a duty than a marriage!
It must be very difficult living in a 5th wheel trailer! Are you able to get out to go for short walks? Are there any support groups for PD where you are now? Do you have any relatives, grown children who would be wiling to help you out? If not, Social Services might be able to get someone for a few days a week-but it would not be free. Sound off when you need to- we're here to listen.

Sorry you are having a bad day. We all have those at times. I am a caregiver for my hubby and yes I do feel discouraged at time. Feeling alone with no one to depend on really is sinking in with me. My hubby also has trouble getting into or out of the car, a chair. A lot of the time he just sits on the seat of his walker. It is easier for him to get up. As I look around our home he is not able to help in any way. It does overwhelm me at times. I hate making every decision and i find that I just try to put my head in the sand and put off doing things. But that does not work because I still have to take care of them later. The friends here on DS have been very supportive and caring. Sounding off helps so just let us share and hopefully things will be better. A morning "cyber" hug helps me to get through some days. Hoping your day gets better and tomorrow will be full of sunshine. Hugs

Normac2 Look ino buying a lift chair. They are available thru lazy boy and many other manufacturers. Also if it is time to move than get motivated and put it into action. The longer you delay the more your symptoms can afect your abilities. Trade in the big truck for something you are more comfortable driving. Good luck

I've helped care for my Father for many years. I know he feels bad to have to rely on others, but we've had many talks and have agreed that we will just stop worrying about what should/could have been and really try to focus on the good things. It became even a bit of a game to find new ways to overcome setbacks or challenges. Humor, exercise, diet and a lot of love has gotten us through and will continue to.

I know there are a lot of resources for assistance, companionship and aid, but you have to search so hard for them. Do you have a county or city health services department? Can your doctor recommend a social worker to help find some support? Were either of you in the service? While the VA services vary so much from state to state, we do have a strong one here that has helped with volunteers. They have programs to build ramps, help buy equipment, visitors, food prep, med help...and support groups.

It's a constant adjustment and a disease that can take a toll so quickly on your soul. My Father so wisely reminds me still..you have to focus on the little positives and avoid the negative and just keep moving on. So hard to do some days I know. Good luck!

Thank you so much for all your encouragement and advice ! i needed to vent my frustration in a safe atmosphere. I didn't realize that I had carried so much anger and stubbornness and that I have been pushing to the limit to maintain my indepedence. I'm the eldest in my family and still feel responsible to "keep us together" As I mentioned before -- my husband and still the love of my life has battled with depression our whole marriage ( 38yrs &rolling). I'm a nurse and have always given care to others, mother to 3 daughters, Gramma to nine ....... got the scene?
I have been wrestling with my Lord and Savior over control of these parts of my Life and in the past four days have barely slept. CHRIST WON THE BATTLE! and I yielded my control ------ peace filled my heart and joy filled my soul. My dear husband has stepped up to the bat and he will be my caregiver. I've finally come to the end of myself.
i know that to a lot of you reading the previous paragraph will think I must of lost my senses & will think this is nonsense --- If anyone wants to know the basis of these comments please ask me.... or better still ask God and read his plan for us in the bible.
We are making plans to get a home without wheels ... my eldest daughter as invited us to live with them until we get everything sorted out.
I have never attended a PD support group --- just not ready--- but I will search one out. I've been using a cane but will look at a walker, I won't feel bad when I turn down commitments that have previously drained all my energy .. i will not feel guilty that I can no longer do it all. NO MORE FALSE PRIDE.