Hi Paula,
And yes I do have bladder issues. Not major,yet, but it is headed that way. Not fun!!! One more thing for us to contend with. I've had PD for 15 years and I started bladder problems about a year ago. It is not progressing rapidly but it is progressing. I guess bladder problems are to be expected sooner or later. Don't know if this helps you any, but at least you know once again you are not alone.
Hugs Joanee

Hi! well......yes i am strating to get some bladder problems, i cannot completely clear it out when i go now......sorry to be crude. My neuro said to do my Kagles as much as possible adn that there were meds that can help that. im just so sick of pills.

peace

bp

omg backpacker i hear ya on the pills... i've gotten so i don't want to even swallow my vitamins anymore... but if there is something for this bladder problem i'll be happy to clear it up...

Yes Paula, we all have problem sooner or lieder .I must say the Kagles exercise helps. It pushes the problem back. Zlatica

I have to learn about pelvic floor exercises. When I have to go...I have to go.

OK guys - I have to say - hearing about this symptom is depressing me big time. After having 6 babies and kegeling like crazy to keep bladder issues at bay all these years ... now to hear this. Man, this disease sucks!!!!!!!!!!! Is there anything not affected????

SIGH!!!!!!!!

I think from looking at your profile pics I would have to say the answer to the question is every bodies smiles look unaffected.

Amazingly resilient people can't hide beautiful smiles.

Sorry to get off topic.... But it's true !!!

Darlene

Hi Paula,

Yes, I know what you mean Paula, bladder issues was one of the first symptoms I can relate back to - I've had that for years.

Nocturia (needing the loo frequently through the night) has been a problem forever (groan!) and an urgency to go in the day has been put down to PD by my Neuro and physio. They have said PD contracts the bladder making you feel the need to go often or giving you little notice. Yet another thing to blame on PD, although mine has improved with taking the PD meds - so I'm not at the plastic pants stage just yet. (Hahaha!!!!!) Sorry, this is not a funny topic but I can either joke or be crude so I'll do both - I know what you mean backpacker, I've just started noticing that, the whole lack of clearance thing - it's hopeless, I've been offered tablets but have opted for an ever increasing list of exercises!!

Great post Paula, thanks!

Julie

I have had some miner problems with my bladder for several years. Always thought it was caused just from 3 pregnancies. Really never related it to parkinson's. Does seem to be gradually getting worse. The urgency problem does get me once in a while. Guess this is something else to worry about.

I thought about trying to get those special cones the astronauts use from NASA......they sia d they were not for retail sale...can u believe that? I said do u guys know what its like to dribble your pants all the time? They said "yes...thats why we made those special astronaut cones"........can u believe these guys?


geez


bp

hahaha BP... did you google "how to make those astronaut cones" maybe you can make em yourself? i'll research it for ya!!!
paula

he he, yes i researched... turns out they use dixie cup paper cup with highly absorbant cotton packed in the bottom and sand and an elastic band around u waist.............that not work for me it too heavy and make my pant front look silly...but the supplies are cheap......................ha! kidding................

peace

bp

The problem I have had feeling the need to go, but taking what seems like forever to finally "go". It almost painful while waiting. I mentioned it to my neuro, but she said it could either be my PD or one of the medications I take causing this problem. (And, it's not EVERY time that I have this issue!)

Well I came in here tonight to see about this very subject for hubby, he seems to be not able to feel that his bladder is full during the night, until it is too late, that is what wakes him up. Our med nurse says it is the sleeping pills, (not able to feel it full) but last night it was not long after he took it, (slp pill) so I doubt it is that. Iam trying to get him to cut off his fluids at 7 pm, to see if it helps. This is very new to him so he is very embarassed about it. For the last 3 years he has had a urinal beside the bed as he will fall if he gets up, but he has not been able to even make it to that lately. Anyone want to share, how to overcome this?

Ladies and gentleman KAGLES, KAGLES, KAGLES help for sure. I am living proof. I am at the end stage of PD. I do not wear pads ,rubber pants or dixi cups. Zlatica