Hi Paul,

I'm new to the group, too. I joined about a month ago, maybe less.

I'm also diagnosed two years ago, but was symptomatic for about five years before that.

Welcome to the group, I've found a lot of support here. It helps to initiate conversations, so feel free to ask questions or write on the discussion board. I'm still learning my way around.

Welcome to both of you. :)

I do not post very often, but I have found this to be a very helpful group with information and wonderful support. I hope you find what you are looking for here.

I was diagnosed last April so I am very new to PD. For me the symptoms came on very quickly and have been increasing rapidly.

Hi and welcome!!!!! Yes, this is the place I feel very comfortable to share and get feed back. This disease PD is crazy and it helps to anchor me here at daily strength.. I was was originally DX in April of 2010 and when I came home I went to the computer and read about PD and then everything that had been going on for years with my body made sense - I had and have PD. I do a lot of trials for PD and that is what I was told to do by a dr. who treats PD who used to share on another site. They have very intensive trials and then just trials that last an hour or so and involve only testing. Since I still work I don't mess around with my meds and my med taking schedule for more than an hour or so and still there are many trials I have participated.

I signed up with MJ Fox Trial Finders and get email notices all of the time.and if I can fit a trial in I will do it. Also signed up with the NPF. There all trials all over the US and outside the US and can be found through the MJ Fox Finder.

Please share - meds is always interesting to read about how much and what works for you.
I suffered from various symptoms of PD (as did most of us) for years before being DX with PD.

I like this site and the NPF site. I find the patients like me kind of complicated but researchers that i meat when doing trials tell me that they use they use the information from patients like and the site is very helpful.

Hi Paul, I, too am quite new to the list. Have been diagnosed since 2010. Am a 71 yo grandmother of 8, wife and mother of 2. I have a hero of a husband who does most of running the household and encouraging me to keep going. I am not liking the progression of my symptoms at this point.....tired to the bone and too much leg and hip pain. Have had a nutrition and medication book on Parkinsons for a few years and am now studying it.

Hate having to spend so much of my time working to adjust to my condition but the thought of giving up is worse. Once I get this latest study on its way, I'll share my findings.

Welcome to the list and I hope you find it as helpful as I have already

Parky2010

Hi Paul
I'm new to this group & although I don't have PD, my partner does & was diagnosed just over a year ago. He is 51yy & I noticed his slowness, scuffling etc about 2 years before hand & mentioned it to him but he told me he felt perfectly fine. It was his local GP the noticed signs of PD & then came the Neurologist, CatScan & MRI. Those tests confirmed only that my partner didn't have an tumours etc. But diagnosed was made by his symptoms only. His neurologist states that my partner is able to continue work but my partner is on a diability support pension & I am his full time career. We have told the neurologist that my partner's symptoms are such that going to work is not possible. We have lost our house & are homeless. We want to apply for his superannuation but because his neurologist (believes) my partner can work when he can't, we will not qualify for early release of his superannuation. We are on the waiting list to see another neurologist but we have been waiting since January for his 1st appointment & will have to wait until November. That's one year for the 1st appointment... that's ridulous. No other options. Only one neuro in our town. It can take upto 2 years to get the superannuation release from the time of applying. Has anyone here had similar experiences than us.

I think my partner believes if he doesn't join support groups or read up about his PD, then it means it doesn't exist. He understands he has symptoms & is on Sifrol (0.75mg) but just doesn't seem concerned about the future & doesn't want to arm himself with knowledge. I am the opposite. Knowledge is power & you then know what you have to deal with. Thank you for reading my comment.

Welcome Paul (and others).

Sorry to hear that you have Parkinson's but glad to have you in the discussion group.

I am going to give you the best advice anyone gave me - buy the book "The Parkinson's Disease Treatment Book" now and start reading now.

If it seems to "technical", or only covers "other people's conditions", don't give up. You need to be the expert on Parkinson's - you will be living with (and fighting PD) for the next 20+ years and you will be fighting on many fronts.

Welcome !

welcome Paul, there us a lot of good information and personal opinions in the past discussions. No subject is off limits. Good luck and good health Alex

Welcome to our support group!

Hi Paul, same here, 2 years ago but have never met or talked to anyone else with PD....jeanie

Hi Paul and welcome to our lovely caring group. I've been a member since 2007 and feel like part of the furniture and fittings!!.. lol.. We all are on the same journey, but at different stages etc.... Next weekend I reach my 21st year with PD, but won't be celebrating....

You are amongst friends.... chill and unwind...

Regards ~ Dirky ;)

I like that Dirky,
Chill and unwind.
I just spoke on the phone today with the first person I "met" that has PD. She gave me great feedback and made me feel I'm on the right track...studying all I can and being responsible for my own care but like Dirky said............ Chill and unwind
Thanks for making me feel welcome and welcome to you Paul. I don't feel so alone.
Jeanie

offering hope
Dr Wallach has several youtube videos online addressing your issue. I'd suggest the Creflo Dollar video part 2 first. Shortly after the 28 minute mark, Dr Wallach talks about PD. Dr Wallach first worked with Marlin Perkins from Mutual of Omaha Wild Kingdom and has far more credits than I care to list. I have been following his advice for nearly 3 years now and am seeing great success. Even my sense of taste and smell are coming back. any questions?
Terry

I have 4 autoimmune diseases and I have had problems with spasms in hands, memory problems and balance issues for awhile but the other day a friend noticed my hands shaking. I hadn't noticed so I just assumed it was just a temporary issue. The next day the tremors were alittle stronger and that night I had a halucination it only lasted a few seconds but I had never had that happen and wondered what caused it. The next morning I woke with a really bad headache and my hands were shaking so bad it scared me. I thought I had had a stroke so I called my Dr and left a message and they called me back and said Dr was off and to go to ER. I went to ER and the Dr there said I had Parkinson's. I mentioned it to my friend and she started yelling at me and said I was just a hypocondriac. I told her the Dr told me I didn't make it up and she said he was just trying to make more money. I left he house and went home but it really bothered me that a friend would say that. She is 83 I am 63 and she said she had read her medical book that is 30 yrs old that Parkinson's doesn't start quickly and the people she knows shuk alot more. SHe is no Dr and has no Idea but it hurt me alot. I know I have to go to my PCP and also to see a Neurologist to be sure. ALso do tremors and other symptoms come and go?

Hi Paul
I'm new too just 3 weeks ago. Welcome, still not quite sure what I am doing with this but learning everyday and I am enjoying everyone's comments.

I was diagnosed late last year as coming "under the Parkinson's umbrella" could someone please explain what this means. My neurologist hasn't explained anything other than the above. I have been doing a lot of research on Parkinson's on several websites and I have a good understanding of PD and learning more everyday but I still don't understand what "under the Parkinson's umbrella" means. I have to admit that my thinking is a bit off par these days.