I lost a lot of weight about a year ago. I had different tests done and got checked for bladder cancer. Everything checked out OK. I have since put the weight back on. My doctor said from what he read it was probably just a PD thing.

This is very common for alot of PWP, it is a constant struggle for my hubby to keep his weight over 125 lbs.
PD burns calories.

My husband has lost over 40 lbs over the past 3 years. Basically almost all of his muscle mass, A great deal of the loss is due to the calories consumed by his constant tremoring.

I lost 20 pounds the first 6 months after being diagnosed. Don't know if it was caused from the trauma and anxiety of being diagnosed or if it was the azilect. Was happy to lose the weight, but my husband said that I was too thin. Have since gained back about 5 pounds.

YES, been dx'd 5 years. In the last year and a half I've lost over 30 lbs. (without trying) The only bright spot in this confusing disease. I am still very active tho.

I have now lost a bit over 50 lbs this past year...could have stood to lose some of that, but certainly not that much. It happened when I realized I was eating from memory and had actually lost my sense of taste. My neuro says it's due to my loss of smell - part of my PD.

I find most days I cannot taste. However, I will get a day every so often when I can - then I'm ready to head to a good restaurant! LOL

Really did not think my smell was affected, but recently had a Christmas wreath delivered to my workplace & had it sitting on my desk. Every person that entered the office commented on how good it smelled the moment they walked in. It was sitting a foot from me & I could barely smell it when I put my nose right on it.

(I am not on any PD meds - so cannot blame it on those.)

His sense of smell isn't good either, but his taste buds are good as he enjoys food. He eats well, so I think it's a matter of loosing strength and muscles so that where the weight loss comes in. Hopefully he doesn't loose anymore but he is having some xrays done this week.

well i must be the exception to the rule. Since I was diagnosed and started on the PD meds I gained almost 50 lbs, and I am not eating any more than I always have, in fact I am eating healthier but still had the enormous weight gain.

Don't worry Paul's I too seem to be the exception to the rule!
I definitely have no weight loss happening here.
If anything I have exercised more and am TRYIng to eat healthier.

Oh well ... Might be time to give in to the chocolates at the Christmas party today!

Darlene :)

See, this is a stupid disease. Makes no sense and we are the type of people that need sense in our lives!

altho I crave sugar like a hard core drug addict

This disease doesn't make sense for anyone. Why do people have to have this disease. If we knew something about the causes, then it it would make things clearer.
It certainly changes lives and not for the better in most cases. .
I guess it could be worse, I keep thinking anyway. He could have a terminal disease such as cancer. At least in my husband's case, it's a slow progression so we are thankful for that.
I just wonder what the future will bring for him, but I can't dwell on it, but just take things as they come.
Sorry for feeling sorry for myself. I feel that way sometime and wish I could change things or make it better for him.

I am trying to get back to my original weight 7 lbs, 10 ounces.

Oh, I missed out on that one!

I have put weight on ...... and not even with trying! I have avoided all sorts of the good stuff, put up with dieting and exercising to find that some are doing it as a symptom - well I am throwing in the towel and off to eat as much chocolate as I can!

Julie

You are diseased only if you think you are. ALL of us will die from something....why not this....maybe bone cancer...another preference....brain tumor maybe? Perhaps try taking what you have and refuse the disease categorically and perhaps refer to our wellness instead of our illness.........just an opinionated thought. Also,I wasn't
"diseased" until my Dr. categorized me as such. I researched ALOT and found out all of us will die from a state of lowered wellness, im thankfull i can take the time i will have with PD to pour love into my family. I consider myself lucky and would have likely chosen PD as a top five in preffered ways to go, if i had to pick a way to go...in your sleep disallows for goodbyes so thats out...................nope.....im good with this......may your wellness run high.


Brer T