If you get desperate ask your Dr for Quetiapine. It is compatible with PD meds. and it knocks you out with no hangover...


BT

I totally agree with you. I sleep just fine sometimes, but sometimes I do not. Can't sleep through the night then I go to sleep about 6:AM and sleep til 10:AM. Just glad I don't have to be somewhere every day. I did start taking 1/2 sinemet around 2:AM and it did help.sometimes, but not always. I will ask my Doctor about quetipine.

Thanks I go to the neuro this Tuesday so I will ask him about Quetiapine. I hear ya Birdy. Last 2 nights i was up all night hopefully tonight I'll sleep. I am unbearably crabby when this happens. I wouldn't want to be around me. Hahaha

I hear you, as that is what's going on with me as I type. I probably slept one and a half to two hours and now am awake again at 3:15 am, I have had no sleep for the past two days. I'm feeling very tired.

I never had sleep problems until recently. Usually I don't have much trouble getting to sleep but then I only sleep for a few hours and I am awake sometimes for the rest of the night. One of the problems I am having is getting chills when I go to bed when I was feeling fine before I laid down. The chills are so bad they keep me awake. Yet I am not sick otherwise and am fine in the morning. Anyone have this? I think my blood pressure medicine may be to blamed. I have never heard of Quetiapine but am going to write it down in case I need to consider sleep medication in the future.

if I cant sleep....everything falls apart from there......no sleep is a spiral into craziness and symptoms going berserk....that is a fact......


BT

Hope, and i hear you too, it does suck!!! Roseanne i get chills almost every night before bed. They don't wake me up though, but they don't ever happen during the day just at night. And BT, boy are you on target about the no sleep and symptoms being worse. I am averaging 2 to 3 nights a week that i cannot stay asleep. I will fall asleep then wake up around 2am and be up from there. (it is 3:39 as i write so this is one of those nights) so that means i am averaging 1 to 2 decent to good days a week... My doc is going to get an earful this tues!!!

Sleep is a major problem for my husband. He is taking 1 mg cclonazapam plus 2mg lorazepam before bed and still no good sleep. Now weaning off lorazepam slowly but waiting to see a neurologist in 5 more weeks. This will be neurologist #5. Has Parkinsonism but no medication. Hoping for help! Maybe another trial of sinemet.

Phyllis, Good luck with the new neurologist! Have the past neuro's been movement disorder specialists? and is this one? I wish your husband and you the best and hope his sleep or non sleep situation gets under control.

Thanks for support. We saw a neurologist from UC Davis specializing in PDwho said it isn't PD but he couldn't make a diagnosis.

Amen to all your comments about insomnia...it sucks....it causes other symptoms to flare up..it zaps what little energy you have..and your muscles react to the lack of rest by doing all sorts of things....does anyone else have pain that almost settles in the lumbar area causing major pain...lack of flexibility, etc.?

I have that. I get pain in my lower back when I stand for any length of time. It gets pretty bad that's for sure. I began to realize it is due in part to how I hold my posture.....my diaphragms are becoming rigid so I breath mostly with my chest muscles that are also becoming rigid, this causes me to hold my chest out and arch my back some to make it easier to breathe by taking some of the pressure off my diaphragms.


peace
Brer T

Donice 57, Yes I experience a lot of pain some in my lower back, neck and legs. It is worse after i have had a couple of sleepless nights. The insomnia throws everything off. I have a new pill that isn't primarily prescribed as a sleeping pill but my neuro said with a clonozapan it should help me sleep it helped 2 nights in a row so i'm keeping my fingers crossed. Without sleep i find every thing is off. My vision is blurry, i'm clumsy, slow moving and i won't even go into the memory.
Yes it does suck but i'm not giving up on finding a way to get sleep!!
hugs, paula

NOT SLEEPING TO GOOD.
YES INDEED I KNOW THE FEELING ONLY TOO WELL.

NOW THEN, LET'S SEE IF WE CAN GET A POSITIVE OUT OF THIS.

AS MY 'ON' TMES ARE SO PRECIOUS, I USE THEM TO THE FULL, SQUEEZING EVERY MINUTE OUT OF THEM.
IF I CANNOT SLEEP, I GET UP AND DO SOMETHING. I DONT WASTE THESE PERIODS IN BED TRYING TO GET TO SLEEP.
IF I AM WIDE AWAKE, I TAKE THAT AS BEING AN ON TIME. IF THEY HAPPEN DURING THE NIGHT, THEN SO BE IT. BETTER THEN THAN NOT AT ALL.

I FIND SO MANY THINGS I CAN BE DOING DURING THE NIGHT. BY DOING THIS IT FREES TIME UP DURING THE DAY.

RIGHT, SO THAT'S THE POSITIVE I GET OUT OF THIS SEEMINGLY NEGATIVE SYMPTOM.
I JUST GET ON WITH IT, MAYBE YOU CAN TOO.

GO WELL AND,
MAINTAIN A WINNING POSITION.

STEWART / ALIVEO

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