Pancreatitis Support Group

Chronic pancreatitis can present as episodes of acute inflammation in a previously injured pancreas, or as chronic damage with persistent pain or malabsorption. Patients with chronic pancreatitis can present with persistent abdominal pain or steatorrhea, as well as severe nausea. Some patients with chronic pancreatitis often look very sick, while others don't appear to be...

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angelica6257 04/14/2015

I was so happy to see your post and referral to 'Happy Panky'. I have found her information to be very helpful.
I have Ideopathic Chronic Pancreatitis and have been on cleanses for over a month now. I haven't taken any digestive enzymes while doing these cleanses. I am managing to date to keep pain factor down. My research has also shown that gallstones, liver stones, etc. are one of the main causes of pancreatitis and I will be going on a liver cleanse soon to flush these out. I will repeat it if needed....
This support group has been awesome for me and I wish to thank all of you for you input and/or suggestions etc. I am open to any information that may help me overcome this debilitating disease. I am determined to get a handle on it, and not let it rule me.
The cleanses I am on have been beneficial and if anyone is interested I will post them here.
My question to you all is, on the Happy Panky video clips, Sherry mentioned a multi vitamin that you can get through prescription from your doctor called "AQUATICS". I am in Canada and I can't seem to find this vitamin here. Have I got the name correct?
Also I will be going on the Pancreaitis Cure that one member said they had after I have finished thorough body cleanses.
So far, everything seems to be manageable and I am for the most part pain free. However I am debating whether to continue the enzymes in any case. If I discontinue, does more damage happen.
There are so few doctors here that know what to do with this disease so it has been lots of trial and error. on my part.
Thanks, and blessings to all of you.

Angelica

gliderlove 04/19/2015

The vitamins you are talking about are called Aquadeks. There is also another vitamin called MVW Complete Formulation which is equivalent. Your doctor should check your vitamin levels prior to ordering these as they are very high dose and excess vitamins can be just as damaging as vitamin deficiencies. As far as enzymes, not taking them will not cause damage to your pancreas, but if your body is requiring enzyme replacement therapy because of the current state of your pancreas then not taking them will leave you susceptible to excess pain, bloating, abdominal symptoms, malabsorption/malnutrition, weight loss, and various issues that accompany you not receiving nutrients from your food. Hope that makes sense. And just an FYI that if you are on prescription enzymes, most of the enzyme company's have a copay assistance program available to insured patients to decrease copays, and they also provide one of the above vitamins and a selected nutritional supplement free.

yeuker 04/20/2015

Glad you found that happy panky site useful. She gets a lot of traction because she appears to have gotten a handle on this disease through lifestyle changes. Super happy you have found something that is working for you.

I believe those vitamins are prescription only because they are dosed much higher than the average OTC person should be taking.

Please keep us posted.

angelica6257 04/20/2015

Thank you gliderlove andYeuker,

So far so good. Stress levels a bit up, and as you know that can cause more flareups, so have to really manage that part. My third cleanse is doing well and almost finished to go onto the fourth cleanse. They are all different. I have found I have no appetite for meat anymore, it was difficult to digest anyways. A tiny bit of dairy and the rest veggies and fruits. Raw veggies are hard on my pancreas, so I steam them or saute in a very little bit of coconut oil. It sure is difficult trying to find a dr. that knows about this, so still looking, and in the meantime I am using trial and error with diet etc., or researching. Thanks again folks for your warm greetings and information.

barbray10 04/22/2015

I know what you mean about this group being a comfort and how hard it is to get people to understand. My gastro dr. at OSU has helped me tremendously. I'm to the point now where I'm going to look at long term options. I've had three nerve blocks which work for a few months and then the pain is back plus burning from the blocks themselves. How much longer can we each go on this way. I have two or three fair days a week and the rest are dedicated to pancreas care, pain, etc etc etc.
This has been my life for nearly 20 years. I'm tried and weary.
Surgery? Not sure I'm a candidate. Not sure but looking into options. Hugs to all. Prayers too. Barb

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