Pancreatitis Support Group
Chronic pancreatitis can present as episodes of acute inflammation in a previously injured pancreas, or as chronic damage with persistent pain or malabsorption. Patients with chronic pancreatitis can present with persistent abdominal pain or steatorrhea, as well as severe nausea. Some patients with chronic pancreatitis often look very sick, while others don't appear to be...
HI guys... I talked to Diane and she said "GEt back on here!!" lol
A quick re cap for those who dont know me.. my son was diagnosed with "annular pancreatitis" and has the SPINK 1 gene deformity...... 7 years of HELL and hospitals and surgeries...and finaly this JUne... he had the BIG one...... TPAIT!!!!!!
HELL of a surgery.... dont do it unless LAST resort!!! 2 months in there..... but today he is smiling and EATING!!!!! woooo hoooo
If any of you have questions about that surgery feel free to ask huggsss to you alll and nice to see you again!!!!
Sheila
A quick re cap for those who dont know me.. my son was diagnosed with "annular pancreatitis" and has the SPINK 1 gene deformity...... 7 years of HELL and hospitals and surgeries...and finaly this JUne... he had the BIG one...... TPAIT!!!!!!
HELL of a surgery.... dont do it unless LAST resort!!! 2 months in there..... but today he is smiling and EATING!!!!! woooo hoooo
If any of you have questions about that surgery feel free to ask huggsss to you alll and nice to see you again!!!!
Sheila
Diane
Diane's right, this is more of family group. I joined FB just for the CP groups, but I learn more with this group. I would be very interested to know if the surgery helps your son long term. My GI said it is definitely a last resort. Unfortunately, I can't have the surgery unless they invent an enzyme I'm not allergic to. I take Viokace, but very low doses because I get covered in an itchy rash, and just for fun I get migraines on top of that. I adjusted to my dosage and it helped, but GI felt like it was too risky to increase the dose because of the side effects.
I hope your son continues to do well, it can really make a difference for his quality of life.
Take care,
Betty
So glad your son is eating...How are the two of you doing? Last time I talked to you he was heading back to the hospital.
When I last spoke to you I to was in the hospital, well I stayed there for 3 weeks, went home for 10 days then went back for another 5 days. But I have been home since then and have been doing IVIG treatments once a month. The GI doc has put me on tincture of opium and up my enzymes and I have been doing TPN..So things have changed since I talked to you. Seems that I don't absorb any nutrients from anything I eat... Can't believe the IVIG is finally starting to kick in, but by the end of the month I get real worn out & can tell I need more...
Glad you are back..Call me..
Cheryl