Pancreatitis Support Group

Chronic pancreatitis can present as episodes of acute inflammation in a previously injured pancreas, or as chronic damage with persistent pain or malabsorption. Patients with chronic pancreatitis can present with persistent abdominal pain or steatorrhea, as well as severe nausea. Some patients with chronic pancreatitis often look very sick, while others don't appear to be...

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Laurieg7048
Laurieg7048

Hi everyone my name is Laurie and i was diagnosed with pancreatis about a month ago. It waa one of the most painful things ive been through and my recovery haa been very slow. I was brought into the ER a few days before Christmas and think I was discharged too early due to the upcoming holiday weekend. When i was leaving. I was still out of it from being so sick (light headed and dizzy) and severely dehydrated) and they just gave me a shot of morphine so I was very unsteady and could barely walk out...my husband couldnt believe i was being discharged. I found out after i got home that my lipase level was 862. 862!!!  Has anyone else has levels that high? And that blood test was done on the day i was discharged!  I ended up going back to the ER for more fluids 3 days later.

angelica6257
angelica6257
Yes, I've had lipase levels over 1500's. It is usually that high when experiencing a flare up or going in for a stent procedure or any other kind of interference with the pancreas. It will drop as the inflammation also drops. Best thing is to not aggravate it and watch what you eat and your stress levels.
Rachelmom
Rachelmom
Hi Laurie,
I am so sorry you got such bad care in the ER. My daughter has been in and out only to come back 12 hours later! Also with high levels ...and very dehydrated...
My mom, My daughter and I all diagnosed with CP ( we have a hereditary form) All started with stomach issues as children. I was diagnosed at 11, my daughter at 10
With a flare up we stop eating...drink little sips of water and wait for the pancreas to settle down.
then start on a liquid diet and slowly progress to eating normal food....low fat....
Sugar is something the doctors don't seem to talk about....crazy! Carbs and sugar put a strain on the pancreas...
I hope you can get some reliev and things improve.
Seaniemc
Seaniemc
Hi could you help me maybe by reading and responding as to your thoughts I have been in hospital for 5 weeks with several pancreatitus and there are pockets of fluid around my abdomen and pancreas. I have had a drain in to alleviate the bloating from the fluid and so far they have drained over 20ltrs. I have recently went onto a food delivery drip which bypasses the stomach as I keep vomiting. They had kept trying to feed me nutrition drinks which don't agree as they are a bit milked and hard to digest. They are 29g sugar per 200ml. and 300 cal. Because I would end up vomiting I was not too keen to take em. Diet drink, orange juice and sparkling water don't help as I vomit. Water is OK but can hang around. However last night I tried a bottle of lucozade which has less sugars than the Diben and 350cal per 500ml 21g sugar per 250ml. It's not milkey and doesn't rest in my stomach. If I had two a day one morning one evening it's 700cal better by 100cal than Diben sugar is comparable and the digestion is much easier. I'm going to say it to the dietician but I'd like the communities feed back oh BTW I'm a 33 yrs old at 147 lb so I've lost 20 lbs or more since this ordeal hopefully they will see this 700cal as a bonus with nutrition feed