Pancreatitis Support Group
Chronic pancreatitis can present as episodes of acute inflammation in a previously injured pancreas, or as chronic damage with persistent pain or malabsorption. Patients with chronic pancreatitis can present with persistent abdominal pain or steatorrhea, as well as severe nausea. Some patients with chronic pancreatitis often look very sick, while others don't appear to be...
The key thing to remember is that a lot of people who feel better end up not posting here so don't get to worried seeing a lot of long term cases here or seeing less than positive results in forums. I think most of us end up getting better as long as we listen to our doctors. Did they tell you why you have chronic pancreatitis? Maybe seek a specialist or a surgeon who may know more about these things are get an opinion from them in the future if things do not clear up.
The biggest thing that you have to look forward to is your awesome new, super healthy diet! If you haven't seen a dietician, it may help. There are a LOT of changes you will have to make with your diet from here on out...and they really help! Some things that work well or are problems for some people are not for others. Fat, as it has been said, is the biggest problem. I have been put on a diet of less than 20g a day. When I was going through the acute stages, I couldn't have more than 10. There are some great resources to track what you are eating without much effort (I use fatsecret.com, and they have apps for smart phones too which link up and make it easy!). You will identify problem foods for you. The big one for me is dairy...a lot of people go vegetarian. Check labels on EVERYTHING! The most random foods have a lot more fat than you have realized. Alcohol, of course, is a huge thing to avoid completely, even when you feel well.
If you don't already love fruits and veggies, now is the time to start! They are your best friend (once you get to eat something besides liquids...). Oh, and let me tell you how much I love popsicles! (they are the best solid liquid ever!)
The good news: (for me at least)
Now that my acute symptoms have calmed down, I am actually able to eat again. It did take a few months of trial and error with foods and meds and such. I am finally experiencing NO pain, NO nausea (if you can imagine that!!), and I am finally starting to sleep, which is helping the fatigue a little. Try to stay as positive as you can...I know that for me, I have been very overwhelmed. I am starting to get a little help with that though, and I'm starting to physically feel better again, which, in turn, is helping me feel happier.
Anyway, that is my super long post for the day. There will be a time where you feel better...and unfortunately, there will be a time where it gets much worse. If you have any questions, ask! Take care =)
I eat less then 40 grams of fat a day and try to limit stress. I've had several ERCPs to open up my ducts. I felt great for awhile but currently am having a good deal of pain, but that happens. I take Percocet when I need to.
I think the most difficult thing is to understand you won't feel better overnight. It takes time, so don't let it get you down. Try to stay positive and follow the instructions your doctor gives you.
Feel better!!!!