Yes and have you tried oxycontin? It is a synthetic drug with virtually no side effects and is very easy on the liver. Now that's oxycontin not oxycodone, big diff and if your allergic to codine then anything with codine in it will set you off, however if you can get your doc or better yet if you've got a pain management doc he will be willing to work on finding the right doseage for you, it comes in long acting formulary as well as IR, immediate release. I used it exclusively for many years back when I battled migraines and cluster headaches. It works wonders so I suspect if you can get one of your doc's to write a scrip for both the la and ir you would be set, though your doseage will need to be worked up as it were. They never get the dosage right the first time. Let us know how your doing and if we can be of any further assistance, Well be well and pain free always, Troy

I don't know about Topamax. That's a good point as I have taken it for years. However, I had never had any side effects from the drug. I have neuropathy in my left heel from stepping on a piece of glass a few years ago. The damage to the nerves caused a pain that feels like someone is holding live wires to my foot. The Topamax stops these nerves from firing, stopping the pain. Without it, I would be in agony.

My doctos are all aware that I take Topamax and no mention has been made about any possible contribution to my CP. A pancreatic duct blockage is thought to be the cause, which basically destroyed my pancreas.

As for pain medicine, I take Percocet ONLY as I need to. I tend to shy away from narcotic painkillers. I do have Oxycontin, which is very effective but I have to be in a great deal of pain before I will touch it...like 911 level pain. As far as I know, people who are sensitive to codeine can take Oxycontin but that is something you should discuss with your doctor first. Better yet, talk to your pharmacist, as they are the experts on drugs.

Goodness lauralab your pain doctor must have loved you for you to have that much pain medication and you sound like your not having any trouble getting more of the same, correct? I agree with your statement to check with the pharmisist about the drugs and any possible interaction with medications she is currently taking. My wife is allergic to codine also so I do understand your pain from seeing her accidentally go through an allergic attack and it ain't pretty I can tell you! I hope you can discuss this with your doctor and get him/her to prescribe you some of the oxycontin to try out. I do know this drug is totally synthetic and was tested extensively for side effects and there are none from anyone who takes it. I was one of those guinea pigs and was taking 400mg a day of the time release oxy and up to 350mg of the immediate release, and my pharmacist thought that was just the grandest thing he had seen and said he was trying to educate doctors that the drug wasn't just a street drug it has tremendous potential for pain relief if utilized properly, may God smile on your efforts...Troy

I too have been on Topamax for several years for seizures, my CP was caused by my blood disorder which caused gall bladder problems, and blocked the pancreas. I take Percocet with no problems since I am allergic to morphine & codeine...I have also been given Toradol which is actually a better anti-inflammatory than morphine. I know a lot of nurses who prefer this drug to a lot of the other narcotics out there that have lots of side effects.. The Toradol is pretty good..

Sorry forgot, Tramadol or Ultram is like taking a Tylenol.. I totally agree with you it is worthless.

Try Ensure Clear, sipped slowly, and crackers..when this is all good then incorporate things like instant mashed potatoes made with fat free milk, toast, basically a no fat diet... I make sure everything is cooked or steamed.. because even a raw peach can send running back to the bathroom. I have been home from the hospital 6 days and I am still eating a fat free diet & drinking my Ensure clear.

My menu is:

Breakfast: 2 egg whites, 1 portobello mushroom scramble + 1 Ensure Clear Sometimes I add a piece of nonfat toast plain

Snack: fat free plain greek yogurt

Lunch: 1 Sweet potato roasted & pureed with 1/2 cup fat free milk or water. Water & ice with lemon

Dinner: Grilled bell peppers, asparagus, corn, potatoes... Ensure Clear
or a butter lettuce with grilled vegies..

Snack: Grilled Peaches or grilled cantaloupe..

Feel better soon..

I have the culprit narrowed down to 2 drugs. Both can be stopped without any side effects.

So I will see which it is. Or if either. Maybe it was just time for a flare up.

Thanks Sophie. I loved the food idea. I did not know there was an ensure clear.

People keep telling me ensure and I stress I cam not sure I can do ensure. But now I know I can if it is clear.

It is funny how literally nothing can set you off.

What I am about to say sounds stupid to you guys I know, but I did it.

I had not eaten all day. The day before ate some bread.

Was making brownies for company with my girls. Cut the brownies and some stuck to the knife. Without thinking I licked off the brownie on the knife.

I knew as soon as I swallowed that sinful goodness what I had done, for nothing like that had passed my lips for weeks.

Company showed up a few minutes later. I continued cooking then ended up in the bathroom puking that little bite of brownie up. You would think Panky could handle just that much. Jeez he gets on my nerves. :P

Thanks all.

http://ensure.com/products/ensure-clear

Diane, what is this you put up a web page location? Come on I see how you are, just gonna throw a bone out there and let us chew on it before you make with the wisdom, right? Ok, hey I fessed up and I can keep a secret also, so what gives? fof lmbo, hee hee hee, sorry I couldn't help myself, I often do things like this and just can't seem to resist a chance to mess with people, Is there a cure for me nurse Diane, or am I a hopeless case, I gotta know....:-))