Pancreatitis Support Group

Chronic pancreatitis can present as episodes of acute inflammation in a previously injured pancreas, or as chronic damage with persistent pain or malabsorption. Patients with chronic pancreatitis can present with persistent abdominal pain or steatorrhea, as well as severe nausea. Some patients with chronic pancreatitis often look very sick, while others don't appear to be...

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Suech 05/15/2017

After quite awhile of feeling bad, I just recently, finally, had a endoscopic ultrasound and was told i have chronic pancreatitis. Since I am alcohol intolerant and thus never drank, don't have this in my family, didn't take any new medications etc, and it doesn't seem to be autoimmune, they don't know why.

I was having massive pain after eating which is much better, but not gone, since starting Creon. I have this weird sensation almost always though, like a ball is pushing into my organ, if that makes sense. It's like if you were touching slime, it feels really weird, but doesn't necessarily hurt, that is how i feel all the time (except after eating I feel actual pain). Does anyone have a similiar sensation? Like something doesn't belong there? Also anyone wake up uncomfortable? I also am feeling a bit depressed at this point. Anyone take an antidepressant and does it help with the pain as well? (like cymbalta? or something else?)

thanks

kimghds 05/16/2017

I am so very sorry to hear of this confusing and somewhat strange diagnosis given your health background... Can you describe the pain that you were having, and where it was located ? I hear similar folks with this type of ball in your stomach or somewhere in the abdominal area?

Suech 05/16/2017

Pain in the left side and around to the back, under the ribs. The damage was mostly found in the tail and body of the pancreas so that makes sense. The "ball" feels like it is sticking in the ribs, near the same area.

Lolo123 05/30/2017

Good morning
My gastro without even explain why gave me Creon. I get stabbing pain under ribs, stomach pain, nausea. Still waiting for endoscopy with ultrasound. I can't say what to do. I find not eating better as eating increases pain

TerryL 07/03/2017

I too was "feeling bad", just not feeling well, my stomach was upset a lot and then, after I ate, I would always have gurgling and sounds coming from my stomach. I was in some pain, but mostly discomfort. I had an untrasound scoping done and the doctor who performed it said I had mild chronic pancreatitis. I was given creon and for months, lived with pain and discomfort. I tried to switch to a very bland, low fat food and ate extremely healthy (no snaking, no desserts, sweets, etc.). After almost one year, the pain started to go away. I was so depressed that I was taking a small dose of xanex to help with the anxiety because I was literally afraid to eat, thus I lost a lot of weight.

My doctor claimed that I was "cured" and since I was skeptical of this, I went for a second opinion. He said he never thought that I had chronic pancreatitis, and was being treated for the wrong thing. However, I KNOW that something was not right with me. My lipase levels are usually on the high end of normal, high 50's to 61 or so.

In a nutshell, I've really had to curb my drinking. I was never a heavy drinker, but I liked an after work cocktail or beer. I don't do that any more. I will have maybe one glass of wine or one beer on a special occasion, but never more than two drinks. I guess I'm afraid of what is happening to my body and if I'm slowly killing myself and not knowing it. Besides cutting way back on drinking, I take a multi vitamin, vitamin c and b-12. Besides the low dose of xanex, that is it. Oh, I also really try hard to avoid ibuprophen (advil). I was someone who was always taking advil for every ache and pain. That too has ended and I now take Advil very selectively.

I still get what I call "phantom pains", like a sharp jab on my right side, by the rib cage every now and then. That usually makes me freak out a bit and I take a xanex to "take the edge off".

njdevil2 07/26/2017

Have you had an EUS or ECRP? Have you been checked for Pancreatic Divisium?

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