Pancreatic Cancer Support Group
Pancreatic cancer is represented by the growth of a malignant tumour within the small pancreas organ. Each year about 31,000 individuals in the United States are diagnosed with this condition, with more than 60,000 in Europe. Join this community to talk to others who have pancreatic cancer or know someone who has. Get advice and the support you need.
I'm Jim i was diagnosed in may of 2019 with pancreatic adenocarcinoma. Immediately they installed my port and started me on fulfluorinox.
I know that's misspelled but I can never find it anywhere. Anyway I went to Penn State University and they put me on three Cancer drugs and a super vitamin. None of which should ever course through the veins of a human being.
So I started looking around and down at John Hopkins Baltimore they had the most experience doing the whipping procedure. So they promptly took me off of those drugs, and six weeks later I believe August 13th 2019 I had the Whipple procedure completed.
So they started me on a junctive chemotherapy gemcitabine and abraxane. I started getting pain in my legs. I went to my oncologist and he left me later for a half hour so he came out of his office and he says no we'll treat we can't blame everything on the chemotherapy he didn't see me limp in there though, and he did not even examine me.
So by the time it comes for the next weeks treatment I stopped. I didn't have any choice. The medicine was causing necrosis in muscles of my legs. I was literally dying a little bit at a time I fired him on the spot. And got another oncologist.
So at that time I'm completely cancer-free or as they tell us Ned or no evidence of disease. So we going that way until this past May. They said they saw a recurrence and then I should start treatment immediately. I said how long if I refuse treatment? He said three months. I said that's fine with me I'll take my three months and I'm going to do with them what I want to do instead of being laying around being sick. I am still pretty good and i haven't had a chemo treatment in over a year. I know for a fact i made the right decision. Even if I die tomorrow, it would have been better than the chemo. And here i am 6 months later.
During my earlier escapades in 2019 and after I got my surgery done I was drawn to Colorado because I like the mountains. My pastor actually wrode his bike out there and met me there. Our intention was to go up on top of pikes peak and have a mountaintop moment, however nature wouldn't have it that way, as we were met by sideways hail and about 10,000 ft.
So anyway I was then "called" to back Colorado, and then Wyoming. There i received a gift from God. I believe i am called to get it to the people who need it. There was a man I met there who had this machine. Really low key. But i am a science guy so i looked into it.
So the first thing I'm thinking about is this is a scam. But as it turns out there were three locations where I sat and had sessions in people's homes, and nobody ever charges a dime. And i too will provide free sessions to anyone who can get here. I will not discuss any more about this in open chat. But if you are interested i will provide more information through email.
There is also one other piece of information that I have to share about a drug that's is not available for human consumption, generally because it's cheap. If you go to canceractive.com and search for fenbendazole, you will find that this drug prevents cancer cells from absorbing sugar. Effectively killing them I found that quite intriguing.
I am not a doctor.
I am not suggesting anyone do anything or admitting that i have done anything that violates law.
At the time of the reoccurrence, I had a 3mm mass below my liver, which had increased in density since the prior scan, and there was a soft tissue density in the pancreatic bed measuring about 7.6 cm.
I had a scan this morning. The 3mm nodule is no longer visible. There was no significant change in the other mass. There is still no fluid present and no sign of metastasis anywhere. Lymph nodes look fine.
My results may be empirical to degree, because I only have one scan since i started, but this is generally an aggressive disease. And I think I got it at least stopped for now.
I am hopeful to have more of a reversal on the next scan. I want to go mountain climbing again.