Ovarian Cancer Support Group
Ovarian cancer is a malignant ovarian neoplasm (an abnormal growth located on the ovaries). It is the fifth leading cause of cancer death in women and the exact cause is unknown. Join this community to get support if you or someone you know is affected by ovarian cancer. Share your story and learn from the experiences of others.
How far do you have to travel for chemo? I hope you have someone to drive you to your appts. One thing you should be aware of is to stay hydrated. I know they will hydrate you when you have your chemo, but be very sure that you stay hydrated. One time I didn't seem to get better, and I had to go back to the infusion center to have them rehydrate me. It took a couple of hours to do that, and then I felt much improved.
Is your new doctor a gyn-oncologist? If you're not comfotable with that doctor and there is another one avaialble, don't be afraid to ask for the other one. You need someone you can feel comfortable talking to about your concerns. Good luck on your chemo, and keep us posted. We care and will try to do what we can to help you through the low spots. Diane
Ovariansu.. yes, i do have a port. and im getting taxol, and carboplatin. this doctor told me about the intraperitoneal chemo, and said it would have been what he did if he had done my surgery,( this is from the doctor i was transfered to) but then went on to say that less than half the people can tolerate it, and even more have to stop halfway through treatment.. so why he even told me this i have no idea. does not seem like it was even an option. so i go to a center right in my town, and get it through my port. yes, my new doctor is a gyn-oncol. and im going to try not to go by first impressions. i hope i get a better "vibe" from him at my next visit.
i finally found out my C 125 results from my very first visit.. 1000+ anyone ever hear of one so high???? after surgery, it was 261, still high, but what a difference!! and my officail stage is 3c. so im finding out more and more information. a little at a time.
right now im trying to find information on head wraps, hats, wigs and such... anyone know a number, or site to get some help with that?
thank you all so very much for your replys. i was very down for a few days, but i guess thats going to happen from time to time. im glad your all here .
I hope you don't get nausea, but in the event that you might, I hope your doctor gave you a good anti-nausea medication. I took emend the first two days and compazine after that if I needed it. Usually, if I got joint pain, it would be about the third or fourth day, and after that I'd start feeling better each day.
I went through IP therapy, but not everyone can do it. In the group I belong to here in Orange County, one of the women was treated at City of Hope. They wanted to do it on her, but because of where her cancer was, they decided not to do so.
Just keep on truckin and say to yourself every day that you will never again be as young as you are today, so now's the time to kick cancer just as hard as you can. We're cheering for you and wishing you the best!!! Diane
I was still working when I lost my hair so chose to get a wig. My onc gave me a prescription for a "cranial prothesis" and my insurance covered the cost of a wig. I got it at a place where they also sold bras for mastectomy patients. The American Cancer Society has a catalog for head coverings. I believe it is also online. Call your doctor's office and talk to the nurse. They often are good resources for these things. Best wishes, Janet
In regards to the wig question, there is a catalog I picked up at the doctor's office - tlc. It stands for Tender Loving Care. I did order a couple of hats and a wig from them, but I didn't wear that wig too much. I think you really have to try one on if you can find a local store. They have real hair ones that are ridiculously expensive, but the synthetic ones are fine. I got one that matched my own style perfectly.
I have the same problem with my doctor. He is an excellent doctor, but not much personality! In two years I've never seen him smile, even when he's giving good news! Luckily, his nurse is wonderful and is always giving me words of encouragement.
At least you won't have your next treatment until after the holidays!
Take care.
Linda