Osteoporosis Support Group

Osteoporosis is a disease of bone in which bone mineral density is reduced, bone microarchitecture is disrupted, and the amount and variety of non-collagenous proteins in bone is changed. It is estimated that 1 in 3 women and 1 in 5 men over the age of 50 worldwide have osteoporosis. It is responsible for millions of fractures annually, mostly involving the lumbar...

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/ Osteoporosis Support Group

osteoporosis and osteomalacia

r6leslie
r6leslie
Just got diagnosed with osteomalacia.....I now have a great hemo/oncologist...... made so much sense since i am vit D defecient. This would also explain so much pain in my legs..... going to have more blood work dr ia trying to figure out what came first but leaning towards osteomalacia.
anyone out there have osteomalacia diagnoses and if so any particular treatment for the pain?
nanny1611
nanny1611
I was never diagnosed with osteomalacia, but there are some overlapping symptoms between osteomalacia and polymyositis (which I have), so I probably understand your pain. Funny thing, I also was vitamin d deficient. An orthopedic surgeon put me on lots of vit. d for 100 days. During this time my neuro had me on large doses of prednisone, so I'm not sure which helped the most. However, I know for sure that the vitamin d helped with my restless legs, ankle cramping and charley horses, and at least some of my pain. Hopefully getting caught up on vit. d will help you a lot. The other thing that has helped my pain level is the supplement called Lauricidin that my newest doctor put me on for chronic Epstein-Barr Virus. I hope you get relief once you begin treatment. Best wishes to you.
sswing
sswing
Hi there!
I symapthise - it's like having severe tootheache in your legs! I am now on a high dose of Vitamin D (1,000 iu D3 daily) and I'm slowly improving - I don't cry at the sight of stairs any more. I found that Diclofenac (Voltarol?) helped me manage the pain, especially at night when just turning over would wake me up. I was surprised to learn that in the UK adults don't make any Vit D from Oct-May, and any sun screen over an 8 will block production. You only need 15 mins sun a day on your face & hands to make an adequate amount. I'll be taking a supplement for the forseeable future I think.
I hope you start to feel better soon.
Best wishes,
Sarah