THE SAME THING HAPPENS TO ME. If I drink a certain amount, my friends will point out that my eyes are completely still. My opthamologist explained that part of nystagmus is neurological and is due to over active neurotransmitters. I'm no scientist, but I know that alcohol is a depressant, therefore lowers neurotransmitter activity. I've been painstakingly researching various medications in hopes of finding one that can specifically target the part of our brains that is experiencing the abnormality- but it would be helpful if there were some research out there that could tell me exactly what part that is. But I'm glad to know I'm not crazy and it's not just me that experiences this.

Exactly my thoughts! I know that they say that gabapentin and the muscle relaxer baclifen helps in some cases, but not in mine. I know that because I've taken them both for other conditions. Now, the gabapentin did slow them down, in rather high doses, but the side effects are not worth it. Leaving me kind of lethargic and almost zombie like.

My doctor told me a small glass of wine would help me and so would gabapentin.
Gabapentin made me miserable.
I dont always care for alcohol so can't say if it helps or not.

Wow, ok I'm not going crazy. I've only ever had a couple of drinks before, but I swear the shaking stopped, or atleast lessened. I tried googling it once, but didn't come up with anything. I'm not much of a drinker, but I am curious to see if it actually works, or if it's just wishful thinking. I'll have to do some of my own research.

ms.glassesmcgee
Give it a try and have a good friend or family member pay close attention to see what it takes to slow down and eventually completely stop the nystagmus. As you are not a drinker, I would advise that don't try to rush this experiment. I drank for many years around close friends before it was even noticed. A dear lady friend noticed it while our group was at the neighborhood bar. She was astounded, as was I. We decided then that we would experiment, to see how much it took for the effect. Turned out to be a 6 pack. Depending on the speed of consumption. Please let us know about your results. I intend to contact Dr Lubnowski, Professor of Ophthalmology at Washington University in St Louis, and discuss this with him.

I am 57 yrs young and have nystagmus and double vision. My neuro opthalmalogist has had me on Namenda. and eye drops called Drazolamide HCI for a couple of years. It has minimized to a certain point my head shaking and slowed the eye movement. I still take a beer or two to slow the nystagmus. Dr. Richard Hertle is a leading researcher in this ares for the last 10 years. He goes out of the country for his research and see patients throughout the country. That was important to me to see someone who is active in this area. He is affiliated with Akron Children’s Hospital. That’s where LaBron grew up

i am 48 and was born with infantile nystagmus. I just learned that 1 in a 1,000 people have what you and i have . Now as far as medication goes i do not know . What i can say is that Cannabis helps me my friends have told me "Hey your eyes are not shaking anymore. The information you shared about Dr.Hertle i am going to look up thank you. I did see an eye doc i asked him about treatment and his response was cornial transplant but my vision had to be 20/100 or worse and even then it is difficult to get in .