hello, I don't visit this site too often since I'm the caregiver for my husband who has non-Hodgkin's lymphoma. It's active and he is in treatment. Your age will help you a lot. I have read where it does come back some times but now you are on the lookout and so are your doctors. So if it does come back you will catch it early. Good luck and glad you made it this far - hugs Arlene

Hi there,

I am a 39 y/o female and have been in remission from High grade diffuse large B cell lymphoma for 2 years.

The anxiety over the cancer returning is worse at the start. It does start to fade. One day you will realise that you haven't even thought about it in a while. The appointments will get further apart.

I hope this helps.

F

Hi and welcome to this group. Is not a very active group but there are people here if you need something. Congrats on your remission. Fear of relapse is very common and most of us have that fear. I believe the further out you get, the more confident you become.

I have Follicular B cell NHL. Mine always comes back at some point but I have long periods of remission which helps. I've also done Rituxan and last year I had radiation and am back in remission again.

Hang in there and do your best to continue living. Every day you enjoy is a day you beat cancer again and again.

Welcome to the group. I'm not very active in this group anymore, which actually makes me ashamed of myself because supporting those with cancer, their caretakers, and survivors is so hugely important.

Congratulations on being cancer free! I completely understand your anxiety of the cancer coming back. I have the same problem, and it can be really ugly, I won't lie. I always say that I was a better cancer patient than a cancer survivor. Being a patient, you know what you have to do...you have to undergo treatment and fight. But once that's over, it's a waiting game.

I was diagnosed in June of '07 with diffuse large B cell lymphoma. Every single year since then right around...May, June, or July....my anxiety goes through the roof, I always think I'm having the same type of symptoms I did back in '07, and I just have a melt down. The only thing I can do is have blood work done and a chest x-ray and wait for the results. So, feelings can run the gamut.

So hang in there, we all know how you feel. If you need to talk, please don't hesitate to reach out.

how did you find out that you had cancer?

my husband found out through blood tests. His calcium level was over 11. Normal is 8-10. He was very tired too. His stomach was hurting (that mainly where the cancer is). hugs Arlene

I found a lump in my left armpit

I had a lump right between my eyebrows

I was very short of breath for quite a while, which was not right for me. Months later, a huge lump popped up on my neck. I went to the ER to have it checked. 8 hours and many tests later, I was told I had cancer.