My name is Sherry and I have a 6 year old son named Michael with Severe Chronic Neutropenia. He is the youngest person ever diagnosed with this disease. He was dx'd at birth. He spent the first 5 days of his life in the Neonatal Intesive Care Unit in isolation while the Dr.'s tried to figure out why a newborn would have zero neutrophils.
Michael has been on Neupogen shots since birth. Currently he gets shots 3 times per week to boost his immune system. He has had 4 operations and too many hospitalizations to count. As he has matured, his illnesses have decreased. In the last year he was only hospitalizied once. We are able to keep his ANC above 200, usually around 1000 with the shots.
Michael also has autism, therefore, I do not have a good idea of how the Neupogen affects him. I would love to hear from anyone how the Neupogen makes them feel so that I can have a better idea of how it affects Michael.
Michael has been on Neupogen shots since birth. Currently he gets shots 3 times per week to boost his immune system. He has had 4 operations and too many hospitalizations to count. As he has matured, his illnesses have decreased. In the last year he was only hospitalizied once. We are able to keep his ANC above 200, usually around 1000 with the shots.
Michael also has autism, therefore, I do not have a good idea of how the Neupogen affects him. I would love to hear from anyone how the Neupogen makes them feel so that I can have a better idea of how it affects Michael.
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My 6mo twin DD's are EBF and just started rice cereal on the first. Everything has been going fine except this morning one of them had a diaper rash (lots of redness around her anus). I read this as one of the signs of an allergy. BUT I did just buy a different brand diaper yesterday (which they have used randomly before w/no issues). Do you think its the cereal or the diaper? Im ready to start...
The new neupogen shot that they have come out with has really no ill side effects. It stings like hell when it goes in, but from my understanding, it is "time" released. The old stuff was like a concentrate. Went directly to your hip bones and forced your marrow to produce white cells. As in "my story", it was incredibly painful. Thank goodness for the new version.
Keep me posted on how your little guy is doing. Wishing you well....
Hope that Michael is doing OK. Have you guys tried any supplements such as Traditional Chinese Medicine's deer antler herb or straight bone marrow from out of the beef marrow bones to help strengthen his immune system? I tried them and they really helped me. My doctor let me suffer for over four years before telling me that I even had it. I chose to try other things instead of the painful shots and they work wonderfully. Good luck to you and Michael! ((hugs))